Flot Chemo and Oesophageal cancer

Hello everyone

i thought I would update my posts from September regarding my husband Trevor who has Grade 3 oesophageal and stomach cancer.

he underwent four courses of FLOT chemo which had many downs and sadly not a lot of ups, however he managed this and had a CT scan afterwards which showed nearly a 30% decrease in the size of tumour. Woo hoo. For the last 7 weeks we have had a wonderful time living in the fast lane, enjoying life, holiday in Isle of Wight, visits to theatres, meals out (as he can now eat more than soups), and having the time of our lives, because on 18th he is undergoing surgery to remove most of his oesophagus and a very high percentage of his stomach will become his oesophagus and life will then become difficult again. He has still not regained all his weight, has taste issues and pins/needles in hands but these are deteriorating as the days go by. I wanted people to know that there is life after Flot chemo and it is worth going through. Will update my post after he has had his surgery which in truthfulness he isn't and neither am I looking forward to and we put our hopes in the hands of the surgeons etc etc. Look forward to hearing from other people who are going through the same journey as us. Mariey x

 

Parents
  • Hi there, my husband has T3N0 oesophageal cancer. He had just a little trouble eating some foods before his cancer was found. He has just undergone 4 cycles of FLOT but seems to be lacking in energy and is very tired in the afternoons. We don’t know when the surgery will be but it sounds like it will be identical to your husband’s. Today we were told he has a pulmonary embolism on one lung but it doesn’t seem to be affecting his breathing or making him dizzy or anything else the nurses asked about. Apparently it’s common after chemo. 
    We feel very lucky in that it hasn’t spread outside the oesophagus but don’t know yet how much it has shrunk if at all, we should find out on Friday. We’re hoping to get away for a few days soon as we’re aware everything will change after surgery and my husband, my rock, will need me as his rock. I have no idea what the future holds but it’s going to be quite a learning curve! 
    All the best! 

Reply
  • Hi there, my husband has T3N0 oesophageal cancer. He had just a little trouble eating some foods before his cancer was found. He has just undergone 4 cycles of FLOT but seems to be lacking in energy and is very tired in the afternoons. We don’t know when the surgery will be but it sounds like it will be identical to your husband’s. Today we were told he has a pulmonary embolism on one lung but it doesn’t seem to be affecting his breathing or making him dizzy or anything else the nurses asked about. Apparently it’s common after chemo. 
    We feel very lucky in that it hasn’t spread outside the oesophagus but don’t know yet how much it has shrunk if at all, we should find out on Friday. We’re hoping to get away for a few days soon as we’re aware everything will change after surgery and my husband, my rock, will need me as his rock. I have no idea what the future holds but it’s going to be quite a learning curve! 
    All the best! 

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