Terminal Esophageal cancer

Hello, 

 

Looking for some insight on what to expect. 

 

 

 

My grandad was diagnosed with terminal Esophageal cancer in January, he was given palliative radiotherapy and then discharged to the community with a life expectancy of 9-12 months. 

 

Up until now, he has needed no care, only last week he told me his swallowing is much worse, regurgitating porridge etc.

 

I've spoken with upper GI nurses, who are arranging for him to have a barium swallow xray to look if he can have a stent fitted. 

 

I suppose my question is what can we expect?

 

Can it be to far gone to have a stent?

 

If so, what next?

 

If he does have a stent, what can we expect?

 

 

 

Thank you in advance for your responses!

 

Jessica 

  • Hi Jessica

    My lovely dad at 66 passed of Osophegeal cancer of the GI junction in October 2016 after a 9 month battle, he was diagnosed in the January too. It’s a cruel cancer as it robs people of eating. He had the stent fitted in July when he was scarily thin but it was still hard to eat for him personally, there is no removing the stent afterwards ( the cancer can grow into it) it’s so they can drink and eat small amounts. Just try and get him to sip nutrisips and keep his spirits up. Please reply if you need to know anything xx anything just ask x 

  • Hello mum2twoboys, 

     

    Thanks so much for your reply, I'm sorry to hear about your dad 66 is no age, that is truly sad. 

    It's difficult as when we were given the time frame, we made the decision not to tell gramp, but now things are starting to go down hill, I think he has the right to know, it hink a part of him still thinks he's going to beat it. 

    I'm still waiting to hear about the appointment for the barium xray, which is frustrating as he's getting worse everyday! 

     

    I'm sorry you've had to experience this, and thanks again for your reply. Xx

  • Hi 

    My dad still also thought he could beat it and I never let him know differently. Even right to the end I was positive with him, maybe he really knew he was dying  maybe your gramps knows too deep down I’m so glad I never did it differently, I was never going to let him know I was giving up on him, your positive then he will be positive. It’s a hard call I feel for you so much, it’s relentless appointments and thinking ‘what next’. He will just get weaker, Dad was a personal trainer ( very fit) but he just started to get weaker and weaker and ‘check out’. 

    Chase the appointment for the X-ray - and he may get the stent fitted and eat a bit more. Is he doing any chemo? Or have they decided not too give him any? 

     

  • My husband is 67 has throat cancer which has spread to spine, he has pain patch and on morphine. But he can't eat and not drinking a lot it's ver sad and you have to watch this happening to your loved one.

    he had one lot of chemotherapy and is on his three week of tables which I dissolve. He's got this tingling in his hands which make it worse. The doctor gave him 12/18 months but with him not eating I really don't know we take one day at a time . He get very confused not all the time but very sad I thought he might have been a bit better I don't know how much chemotherapy will help if anyone can give any details of what to expect with this kind of cancer thanks

  • Hello

    im a 41 mother of 3 and I was diagnosed with oesophagus cancer with mets to lungs and liver and later bones on 1st August 2018.

    i was also told straight away there wasn't much to be done apart from some chemo ( an attitude that completely shocked me as I am in otherwise good health and have never smoked or been overweight).

    i had eight sessions of cisplatin chemo which improved my eating almost instantly and shrunk all the tumours by more than 50%.
    Unfortunately I was still refused further treatment and told to come back in 3 months.

    in that time the cancer all got bigger and after a further 6 sessions of carbo taxol chemo in which the cancer actually got worse I have now been sent home as there is nothing more they can do!!!!!!!

    i have not needed a stent but if it helps it's worth trying, not being able to eat is one of the worse things about this disease as you are hungry and want to eat but are physically unable it's so frustrating. Even if it only works for a short time is it not worth it? In the beginning I was surviving on wotsits and energy drinks and would have given almost anything just to have a slice of bread and butter!

    good luck with your grandpa I hope everything goes as smoothly as it can.

    perhaps see if he can get even 1 session of chemo? Nobody knows how something will work until they try.

    Krang