18 months in and we’re still going

I know this sounds really silly and selfish but this how I feel and I don't like it. 18 months my husband was diagnosed with bile duct cancer which was incurable  In the last 18 months in an attempt to extend his life he's had four rounds chemotherapy which is dominated every single week. Regular trips to hospital for appointment checks scans and tests all reaffirming what we already know. Most recently he started to fill up with fluid, which went drained were also confirmed as cancerous and that we were talking weeks to live now. That was two months ago. It seems to be every moment of every day for the last 18 months we have been putting his needs at the top of everything and nothing else matters, and nobody else matters. Peoples birthdays and Christmases have gone past trying to make everything perfect for my husband because this will be his last one. I keep thinking this can't carry on because we've been told by the professionals we're talking weeks but he still goes on. He is scared of dying, who wouldn't be but nothing seems to help him doesn't seem to help. Unfortunately the input that we've had from McMillian has been negatively received by him and I doubt he will engage with them again. It just keeps on going but with no positive end. I am sure there will be people on this forum to say thank you lucky stars for 18 months more than you expected and on good days I do but on the bad days I wish it was all over and then hate myself for thinking that. I don't think I can carry on much longer but there is nothing else I can do.

  • I totally understand your post.  The whole thi g is beyond horrendous for all concerned. I hate seeing my partner suffering and getting angry and upset. there are days when I want to run away and that makes me cross and quite disgusted with myself. I love this person so how can I possibly have thoughts like!  I am trying hard to enjoy each day rather than waste them with darkness but oh my goodness it is not easy. Keep strong x

  • I understand exactly how you feel, cancer and treatment totally takes over the life of both the patient and the carer.  No matter what you do or say, it is always there.  Someone on this forum very kindly suggested I take time out to do something for me.  If you can perhaps you should try the same.  I hope you get some relief from the stresses of your partner's condition.  Take care.