I can’t do this - and it’s not even me that’s ill

Backstory: My mother recently received her third diagnosis and started chemo today. First two were frightening - first one was breast, 10 years ago, which was treated with hormone therapy and a mastectomy. As a result of side effects to her treatment for that, she later developed cancer in her lower abdomen around seven years later, requiring surgery and radiotherapy.
 

Her first concern on getting that treatment was that it may cause further cancer as the previous medication had. She was told not to even consider it as the chances of getting it from that treatment were negligible- around 5% - and not to worry about it. 2 years later, around 3 months ago, and she developed a cough which wouldn't go away with antibiotics and we all knew there was something up. You guessed it, she has cancer in her lungs and also some disease in her peritoneum. The 5% chance happened. We still can't believe it. 
 

But the thing that's different this time is that she requires chemo as her primary treatment. The first two times, her greatest anxiety was having to have chemo and when we found out she didn't need it we all experienced a huge sense of relief. We've always dreaded it. Fast forward to now and she needs it and there's no alternative and her first session was today. And I'm really struggling to see how I'm going to support her. I've been running her to appointments and to do errands since the diagnosis as I've taken time off work for stress (I'm in the process of leaving my job as a teacher as I can't deal with teaching workload stress and care for my Mum concurrently, and I don't know many people who could), so I've been spending a lot of time with her (we don't live together but I do live nearby). I've taken her to meet her consultant and senior nurse who described all the potential side effects, I've taken her to try on wigs. And I've felt relatively strong for her and that we can get through it together.

 

But today, her first round of chemo, and I just lost it. I was meeting her at the hospital with my sister as we had agreed to split the time sitting with her so we could each have a break. She went in at 8:30, I agreed to get there at 10:30. I literally didn't sleep a wink last night with increasing worry, and stupidly I thought that reading about the process of chemo would help, and it's done the opposite: the idea of seeing my wonderful mother who raised me and two sisters on her own and has already survived this bloody disease twice, systematically poisoned over several months, is making me feel physically ill.
 

As soon as I sat next to her on the ward I instantly felt faint and nauseous, to the point where I scared the hell out of her and had to go to the toilet to get some air, straight after sitting down. I feel awful for doing that to her: that she has all this anxiety and dread and she had to worry about me in her first few hours of chemo. I don't know if I'll be able to forgive myself for that. I did eventually calm down a bit and sat with her, then drove us home and made our tea. I'm staying with her as my sister, who lives with her, can't give up her job and she can't be on her own as the risk of complications is high, mostly owing to her diabetes. So I went to bed to call my partner and relay the events of the day, expecting to fall asleep exhausted as I'm going on 48 hours of being awake now and I just feel physically ill again, I feel sick and am getting chest and stomach pains (all symptoms I have experienced with stress in the past).

 

I have a history of anxiety and depression and I'm so worried it's going to come back and I'm not going to be strong enough to get her through this. And as I say in the title - it's not even me that's ill. I don't feel like I can do this.

 

Anyway thanks for reading and congratulations if you managed to get to the end of what has turned into a rambling mini-novel. One I can't see having a happy ending.

  • Hi rjoepenk welcome to the forum the club nobody wants to join have you been in touch with GP, macmillan or Marie curie to see if you can get some support, that's one of the problems with cancer it does not just affect the pacient it affects all the family as well, check with your doctor to see if thave any ideas to help you. Best wishes.. Billy 

  • Hi,

    So sorry to read about your Mum’s situation and the fact that treatment is causing so much anxiety.

    You seem to be caught in a vicious circle where her natural fear of chemo has triggered your anxiety which is in turn amplifying her anxiety.

    Hopefully her actual experience of chemo has helped allay some of your mutual fears, as we always fear the unknown and the what-ifs more than something we’ve already experienced.

    When I was on chemo, after the first session, I insisted on being left alone after being dropped off. This enabled me to get into and stay in a calm state of mind without having to care for loving but anxious family members with over-active imaginations. I really needed their help afterwards though as the side effects kicked in. 

    Have a chat with your Mum. It may be that she might prefer to be left on her own, then again she may need you to literally hold her hand. We’re all different and we all find different ways of coping. 

    Have you thought about asking MacMillan for help? My wife was offered counselling by them to help get her through the experience. I’ve faced cancer both as a son and as a patient, I actually found it less stressful as a patient so I can empathise with your situation.

    Best wishes

    Dave

  • Thanks Billy. I feel reticent to do that at present as my Mum has myself and my sister to care for her, and other people have nobody (a family friend has recently had a bad experience caring for her husband with minimal external support) so I'd sooner they receive the help.
     

    I may speak to my GP about how I'm coping with it, I swore I'd never need the support of anxiety medication again after suffering a major depressive episode several years back, however I need to determine if it would be sensible to ask for something ask I'm no use to anyone in the state I have got myself into over her chemo.

  • Cheers Dave

     

    Thanks for your words and understanding. I agree with a lot of that, particularly the fear of the unknown aspect of chemo and it's helpful to know that you found it more stressful as a carer than you did as a patient. What's driving me mad is not knowing which side effects she is going to experience - even if she was to experience the worst that chemo can do I wish I could know now, rather than worrying about "will she? Won't she?"

     

    Like I said above the worst thing is that I know I'm affecting her for the worst. I managed to remain calm and strong through her two previous illnesses as we were all so relieved about the fact she didn't need chemo, but now it feels like a nightmare come true to me. I may look into getting some counselling from Macmillan if there's any available as I'm not going to cope with the next few months otherwise.

  • Hi, yes counselling from Macmillan has been great help to me (husband is the one with cancer) I  just felt that I was spinning out of control couldn't sleep emotional rock bottom but putting a smile on for everyone especially my husband, and please dont be put off as I nearly  didnt have my first appointment I asked the receptionist where should I go and see Mrs !!!!!!!  o she said the bereavement councillor, that nearly floored me as my husband is still alive and I hope he will be for while, but the counseling sessions have helped 

  • Hi there! You may be interested to know that the medical staff will monitor your mum while she is on chemo and if she has difficulties they will adjust the drugs. As I understand it, chemo is like a cocktail of drugs specially picked for each individual case. If the drugs cause problems they will try other combinations. The side effects will disappear after treatment ends.

    Also think that many, many people have gone through chemo and lived long after. Your mum sounds llike a strong woman. Have hope. She'll feel better if you don't colapse in a heap. Show optimism. The best you can do for her and yourself is try to keep everythng going as normal as possible. Do the same things you used to do, chat, cook, eat, watch TV together, talk about old times, etc. In what concerns work, both you and your sister might be entitled to compassionate leave.

    Sometimes we feel we cannot cope with life because so many things are out of our control. Talk to someone. Don't delay asking for help and conselling. The Macmillan Trust has a free number you can ring and they are very good at listening and advising. They can also send someone round to visit, chat and even to help with all kinds of things. They are all trained volunteers and know what cancer is because of personal experience.

    Macmillan Trust FREE number 0808 808 00 00 (line open from 8am to 8pm, 7 days a week)

    You can also ask at your local hospital about other cancer charities in your area. They are all very good with advice and help.

    Hope this is helpful. Stay strong and post again whenever you need us.

    BIG HUG

  • Hi Rjoepenk,

    I am sorry your mom is dealing with cancer  and it must be very hard for both of you.

    My mom has stage 4 cancer and has had her first round of chemo. I am struggling terribly with fact that it is unoperable and that she is in South Africa. be very glad that you are abel to be there in person for your mom. I am not in same room with her but just thoughts of her on pain and knowning she worried ameks em upset.

    I easily get depressed and I went back to the doctor as a precaution to help me cope he put me back on anti deprssents. I hated it when people tell me STOP BE STRONG for your mom.,,Gosh I dont make myself be sick or stress it is like an involuntary action. I know exactly how you feel.

    I, from my own experience recoomend counselling or just friends who will listen and dont judge you,and my anti deprsaants honelty help. 

    I am here for you if ever need to talk.