Hi my sister has multiple myeloma and has just been diagnosed with bowel cancer.Has anyone had major surgery with myeloma she needs major surgery and would like to hear from anyone with multiple myeloma.
Replied on the other thread and then noticed this one.
I've had major surgery twice since being diagnosed with myeloma, the first time after getting sepsis, where I had my sigmoid colon removed and later, when I had to have my stoma redone due to a stricture just behind the stoma.
Both times I was expected to either die or suffer serious complications but with the last surgery I sailed through and was out of hospital afterjust 4 days.
Just remembered, I also had a prophylactic nail put in my left femur. I was out within 48 hours after that.
Hope I can be of assistance with any quezzies you have.
Hi Taff thank you so much for your reply.I hope you are feeling well at this time.It is good to hear about your surgery going well with my sister having multiple myeloma it is a very worrying time for the family.
Yo yo yo me had cancer back on start of may 2016 playing tennis running for the ball went down like a sack of potatoes took 8 months before i got diagnosed it was large tumor in my hip joint and thigh multiple myeloma could hardly walk for the pain the tumor had eaten away at my bone it was large hole at one point they thought about taking my leg off but they said after it would not make a difference to my cancer as it everywhere and there is no cure i lso have now arthritis in the joint lymphedema in my legs and neuropathic pain in my feet feel like they are on fire and ice blocks at the same time and use crutches to walk as i have nerve damage from the tumor cant lift my leg up when standing or sitting down doctor told me to hop it lol Then they found I have tumor on my pancreas neuroendocrine pancreatic tumor pnet type of slow growing cancer but can cause blackouts feeling thirsty sickness and jaundice So went into remission feb 2018 till march 2020 for so long but it has come back started on daratumumab treatment as second line treatment had eight cycles just less than 8 months went into partial remmsion but it came bsck started on third line treatment now lenalidomide but then got neutropenia sepsis 3 times spent combine 3 weeks in hospital week in each time over period of a month white low blood cell count now found put after having ecg then cartography scan that my heart is only pumping at 49 % apart from this me ok hope you sister is well how is mm now and the bowl cancer I wish all the best keep the good fight yo yoxxxxx
