Hi, My Dad was diagnosed with a Glioblastoma stage 4 tumour at the end of April. We had seen a change in his behaviour over the previous 6 months. He has become withdrawn from the family at events and he was forgetting things such as facts and general knowledge, he’s such a clever man. My mom and Dad moved house on the Saturday. They had moved around the corner from me. My Dad stayed at my house whilst we helped the movers, as we felt it was too much for him to help as we had by now seen more changes. On the Monday I registered them at my doctors and told them I had concerns about my Dad. They advised us to go to A and E as we thought he may be showing signs of a stroke. By Monday afternoon we were sitting in a family room being told the tragic news of the tumour. 2 weeks later he was having de bulking. They only removed minimum due to its shape (tentacles) as it could cause other issues and complications. We were told that if he had treatment it would give him 6 - 12 months and without treatment about 3 months. He chose to go without treatment saying that it wasn’t worth it, as he didn’t want to get sick and feel terrible. We opted for alternative treatments. Vegan diet, CBD oil, supplements. He looks so well. I would say the healthiest man with a brain tumour. He is now bed bound as from last week and is paralysed down the right side. He barely can talk to us and communicates mainly with his gestures and thumbs up or down. I would advise anyone to get the home set up immediately for care at home. Get onto OT’s straight away and get a good support system going. We had the adapted bed about 8 weeks ago and equipment needed for bathroom and aids so we could get my Dad used to everything. From a week ago we have carers x3 daily funded by health. I’m off work due to stress as there has been so much to do and sort out. I need to be there. Over the last 2 weeks we have seen massive changes. We are in the dark about how long we will have our Dad with us. We are strong in our faith that God has bought us close together as my my and Dad were living in Wales (has been there 15 years) We know my Dad has the best to come when he goes to be with the Lord but we just wanted longer with him x
