Hi jillemma 

Have you called McMillan team ? They do have a really good finance dpt and to be honest it was the only part of their service I found of help , they call the work and pensions office on your behalf and help to tell you anything you may be entitled to , especially if you have young children . Unfortunately it wasn’t until the end of our journey that I discovered their help as I was a bit reluctant to accept the situation we were facing at the time, but they were very helpful . I had a mortgage with no protection and so you can imagine not ideal, but they have some good advice on how to deal with it and what to do.youd be surprised how understanding a lot of people are if you just tell them your situation they often have dpts in companies that deal with families going through cancer . 

The chemotherapy is brutal and whilst my partner worked whilst on the first 2 cycles it totally wiped him out . I hope your getting lots of support from family and friends . It’s totally exhausting for you the carer as well as the patient .xx

Hi,

EOX can be hard, I made the mistake of thinking the side effects were inevitable so didn't complain about them until my third round started. They made some changes to the rate I received the infusions and my anti-nause and diarrhea medication and things weren't quite so bad. 

I got into a routine of sleeping for about 36 hours after each infusion and then forcing myself to get up and take the dog for a walk. That was really hard but I found that if I didn't the recovery took longer.

MacMillan's finance advisor was really useful and basically filled out the PIP application forms out on my behalf and arranged for them to be fast tracked - all I had to do was sign on the dotted line. 

Good luck
Dave