I'm sorry to read about your granddad Helen, this must be very frustrating for you all.

Hopefully some of our members who have experience of soft tissue sarcoma or been on similar journeys with their loved ones will pop by soon for a chat.

I do hope you hear back from your granddad's sarcoma nurse soon but whilst you wait you're more than welcome to discuss his situation with our cancer nurses. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

I'm not sure if you've come across them already but it may be worth getting in touch with the Sarcoma UK as well.

Best wishes to you both at this difficult time.

Steph, Cancer Chat Moderator

Hi Helen so sorry to hear about your situation. My dad was 87 when diagnosed with lung cancer. It was made more difficult because he lived in Jamaica we did try to pursuade him to come home to uk.

Anyway-before his diagnosis there were lots of back and forth for tests. He was given an appointment for an overnight stay for 3 days and this is when I arrived. We asked and recieved a sit down chat with the consultant who we grilled on nutrition, treatment, time left ect-asked her about treatment and age but a friend of ours is also a doctor so we had that answer before we asked. Plus dad did not want treatment to give him extra rtime to live uncomfortable). Had my sister not asked to speak to the consultant-surprisingly no one would have said more than hi to us.

There was nothing more to be done but what we wanted was clear instruction on what to expect:time frame, nutrion, treatment-why, when, side effects ect,  ect -I also got some answers in the UK from Macmillians also useful talk on respecting dads wishes. I would ask and don't take no for an answer to have a chat with the doctor, consultant in charge of your grandads care-have a list of questions prepared. We did have to sit/wait around for about an hour or two-as we appreciate they are busy people and all sorts crop up.

Macmillians had a nurse call me back-fantastic this alone may help in discussing illness, likely treatment, pain relief ect; best wishes and love to you and your loved ones