Confused

Hello,

 

My mother was diagnosed with bowel cancer last August, subsequently had an op to remove a 7cm tumour. The docs found more 'polyps' but were unable to remove them at this time. Within a month mum was returned to hospital with sepsis. Due to this complication chemo didn't start until January. After 5 cycles of 8 the chemo was stopped due to the side effects. In May mum was rushed to hospital with a blockage, cue further diagnosis of the cancer has spread throughout her bowel, and various other organs. Nothing they can do. 

Mum has now been back in hospital for the last 2 weeks with further blockage and issues. Within this 2 weeks she has seriously gone downhill, losing weight, looking gaunt and near constant diaorrhea. Today she fainted getting out of bed, is now on a drip and is bed bound. The palliative care doc has mentioned hospice to her.

 

Here's my confusion- most of this we know because we've been sneaky and asked nurses, docs etc. Mum doesn't share with us the details of her diagnosis. I know she's trying to protect my brother and myself, but it's hard.

I'm the 'strong one' and my brother is the 'head in the sand one'. I'm beginning to believe that this is the beginning of the end of life phase. It's so difficult tiptoeing around the situation. 

I don't know what I want to get from this post, except to say that I'm 'fed up' with being the strong one, and I'd just like to hide my head in the sand sometimes too and it bloody hurts to see my mum in this situation. :-(

  • Hi there - it doesn't just 'hurt' it's excruciating & I can really understand why you get fed up with being the strong one. Given that you said your mum has been trying to keep things from you I suspect you take aftyer her? It's likely that you'll carry on being the strong one I'm afraid - roles in families are hard to shift - once you've got one you tend to be stuck with it & you know it's probably true that you are strong. But, that doesn't help does it when all you want is someone to understand that you hurt & feel things just the same as everyone else.

    You've got a lot to face in the next few days & weeks but if and when you need an outlet do come here - there are always people who will listen & do what they can to support you so you won't feel quite so alone with this burden.

    I do recognise how hard this is for you - I've had a similar role in my family & I know how important it was when an aunt of mine told me she knew that on the inside I was a bit of a softy. You're the same I guess so I'm sending you a hug & a warm shoulder if it helps at all. Take care x

  • With my grandad I asked the Macmillan nurses directly, “is he at end of life and what do we do?”  The hardest question to ask however they were amazing and answered us honestly, yes! We were then in a position to get a place at a local hospice and be ‘aware’ of what was to come with some great support. Could you ask someone directly? I also agree with the below post, unfortunately being the strong one is your role but that does not mean that you cannot lost it, cry uncontrollably and stick your head in the sand for a moment or two. It just means that you will get back up and keep going. Xxx