Hi there 

Our journey has just about to start . My mum has been diagnosed with the same thing . PET scan results on Tuesday . Dreading it.  Did you try alternative remodies as well ??  When was the first Chemo ? 

Y

Hi,

Have you met with a consultant yet (surgeon)? I'm sorry to hear that, stay strong. 

Well, we've also tried THC & CBD Oil (The THC is hard to get hold of). He used this before and at the same time as having chemo which actually helped with pain, mood & sickness to some extend, if it helped srink anything we don't know.He actually stopped taking the THC & CBD towards his last chemo & hasn't touched it again yet as didn't want anything to interfere with the immunotherapy (don't advise taking THC oil through the mouth at all - it's a hallucinogenic, but this can be avoided completely).

His first chemo was 18th Nov 2019, he was diagnosed beginning of Nov (fairly quick turn around). We attened meetings to discuss how the type of chemo he was going to have would present symptoms wise & we also purchased things like a Ear thermometer (you will need to monitor this daily for signs of infection & well as sickness volume).

Regards,

Ward19.

Hi [@TwilightZone]‍ 

I can see that [@Ward19]‍ has replied to share their experience with you. 

I just wanted to add some further information about THC and CBD oil make you aware of the advice given on the NHS website.

Even though it's available to buy online, this isn't recommended as THC is illegal and could be potentially dangerous as the quality and content isn't known. There are also side effects such as dizziness, hallucinations or interactions with other drugs so if this is something that you consider for Mum plaese make sure that you discuss it with her medical team. 

You can find out more about cannabis, cannabinoids, cancer in this blog post and can discuss this with our cancer nurses on 0808 800 4040, Monday to Friday between 9am to 5pm. 

Best wishes, 
Jenn
Cancer Chat moderator

Sending you and your dad so much love! I know this is a rough period of time. And just reading the list of things your poor father had to go through it’s absolutely heart breaking. I can only advise you to stay strong for your father and continue being as courageous as you are. Emotional support is everything! 

Keeping you all in in my prayers x

Hi,

Sorry to read about your Dad’s situation.

Try not to get too hung up on the word inoperable, easy to say but hard to do I know. 

I was given similar staging numbers back in 2013. Mine is inoperable and unsuitable for radiotherapy because of its location (the primary has grown around my aorta). I was lucky enough to respond unusually well to chemo and have been living with cancer since then.

Good luck

Dave

It's too late. My mother has been sent home 3 weeks ago with no hope.  We are all devastated.

Trying to come to terms with it. She doesn' want or is too weak for alternatives and fights. We are just trying to make her as comfortable as possible .

Thank you for your speedy response. If we had had more time it would have been worth the fight.

:(((((

Hi Twighlightzone,

I'm really sorry to hear this. I'm afraid my father has also had some bad news, the Adenocarcinoma has been destroyed but he's now got Sqamous cell cancer growing & occluding his food pipe. It's fair to say i've found it hard to come to terms with this again & would welcome anyone on the chat to discuss this type of thing.

How old is your mother is you don't mind be asking? So they haven't offered any treatment?!

Regards,

Ward19.

Hi Ward19

So sorry to hear about your father, my father too was diagnosed about a month ago eith the same cancer,  he has had laser treatment and rapidly gone downhill in the last week.  This cancer is horrific i hate it ! 

I hope your dad improves , my dad is so frail and  losing his memory so gaunt too , he has not even been told he will have Chemo, he is 69 and i feel his cancer team are just  going through the motions with him . I'm finding it very hard to cope . I feel your pain .

HI Ward19 

My mother is 76 but was always so fit and young. Helping everyone else before herself. We are coming to terms with the diagnoses. NO TREATMENT OFFERED . Everyday is a new challenge.

Things packing up and causing stress. Urine infection , antibiotics. Sickness pills to keep down the small amounts of food she can eat. Which isn't much . Small small tiny meals. Pain killers for swelling . Steroids (prescribed by the nurse) to give her some strength to get her up the stairs into her bed.   Actually they helped alot but it's just for a week or 2 to give her a boost.  It's a challenge but one we have to accept.  Lots of visitors and some smiles in between .  Sorry to hear about your father . Cancer is terrible . We are just basically having to come to terms with the beginning of the end.......

I suppose some poeple don't have time to say goodbye. I wish there was fight on our hands but unfortunately that has been taken away from us ........

I wish you all the best. If you are able to fight ? 

Check out everything you can which i'm not allowed to write here . It gets immediatly deleted if you suggest anything .........

Some forum ! 

X Y

My husband was diagnosed in May but is operable.  I joined a facebook group called Oesophageal Cancer and Caregivers.  It has been so helpful, supportive and informative for me.