.. treatment through their cancer journey! My mum was diagnosed with stage 4 ovarian cancer but my god! The way she has been treated has baffled, shocked, and terrified me!
First off her diagnoses was a nightmare! A lump was found in her neck in January when she went in for an examination for something else! I’ll try and make a long story short but after appointments after appointment and the doctor saying “I think it’s ovarian ..... but it’s not my job to diagnose that, it’s up to the women’s hospital” there was a couple of appointments like that which was extremely frustrating!
She was finally told what it was! Where it was! This took about 2 months!
Every time we go to a new appointment she has cancer in a new place! And we go “oh that’s new” and they say no that’s always been there since your diagnosis!
Shes actually been to an appointment and the nurse said “I don’t actually know why you’ve been booked in to this appointment”
weve been to an appointment where one doctor has told us where the cancer is, what they are going to do from there! He’s gone “I’ll get the official doctor to come in now” and then that doctor has said exactly the same thing!! (What’s the point)
she was put on chemo and was told 3 cycles! No one told her what was happening after these 3 cycles! When we asked the chemo nurse what happens now after the 3rd cycle she looked confused and said “you’re not on 3 cycles you’re on 6, the doctor will explain on your next appointment”
shes been put forward for surgery! She discussed everything with the doctor what was going to happen everything! Then she went to see the anesthetist who said “so we are doing key hole surgery” never in any appointment have they mentioned that and when my mum corrected him he went “oh yeh” so that doesn’t fill us with confidence at all!! She was told to cancel chemo and what for her appointment in 3 weeks!
Ahes phoned today, was told she wasn’t on the system and to phone someone else! So she did and was told again you’re not on the system “you’ve requested to be done at the royal hospital” and she flipped! She hasn’t! The doctor requested that! Because she has gall stones that need taking out as well!! And they said “well it’s a long we wait for that hospital you requested” again! She didn’t request it the doctor did!
No one seems ro care. No one seems to have clue what’s supposed to be happening! Now my mums crying on the phone to this stranger saying you just want me to die!!
And I just can’t cope anymore! She’s been treated shockingly! And I just don’t know what to do to help her! She hasn’t had chemo in 4 weeks now! She doesn’t know what’s happening she doesn’t know who to speak to cause all the cancer nurses or Macmillan nurses keep saying is “don’t worry it’ll be sorted” it’s alrighr for them to say that! They don’t have stage 4 cancer dealing with doctors and nurses who don’t seem to have a clue what the other has said or organised!
Sorry for the massive post post but I just don’t understand how this is happening with a cancer patient!
