Hi Auntyb,

I'm so sorry to read about your husband. I can only imagine how hard this is for you all. I'm sorry that I can't offer any advice in terms of similar experiences, but my reply here will at least ensure your post is viewed some more times and hopefully some others will be along soon who can share any similar experiences or who can offer some words.

I hope you find this forum useful and do feel free to browse other topic areas for anyone who is going through or who has gone through something similar. It's a very welcoming community of people.

Wishing you all the best.

Ben

Cancer Chat Moderator

I am posting this message in the cancer Forum which I have joined today (3rd July 2024) as I have recently been diagnosed with Cancer of the Ampulla of Vater and have been trying for some time to find other people with this same and very rare cancer? I am 80 years of age and my normal life expectancy having lived all of my life in Yorkshire, England is 79 years and 7 months. I have already turned down a Whipple procedure as I don't think I am fit enough and am shortly due to meet with a local Dr, who is a specialist in chemotherapy. Due to other recent medical problems such as Iron Deficiency, a faulty valve in my heart and a problem CT scan resulting in an Endoscopy, the chemotherapy meeting due in June has had to be postponed until late July.  My current understanding is that the ampullary cancer has been suspected for more than one year from other medical issues I have experienced but this means that it is likely I have had this cancer already for one to two years and the recent endoscopy confirms that it has not yet spread to other parts of the body? Given this background and my age, my current thinking is to have no treatment such as chemotherapy and simply to 'watch & wait' as I have done with the Prostate Cancer I have now had for 16 years and I am told that I will die with it, but not because of it? Finally, I send my kind regards and best withes to anyone out there with Cancer of the Ampulla of Vater and I would welcome any thoughts about my current plans above? Regards, NogBad (Male). 

I am posting this message in the cancer Forum which I have joined today (3rd July 2024) as I have recently been diagnosed with Cancer of the Ampulla of Vater and have been trying for some time to find other people with this same and very rare cancer? I am 80 years of age and my normal life expectancy having lived all of my life in Yorkshire, England is 79 years and 7 months. I have already turned down a Whipple procedure as I don't think I am fit enough and am shortly due to meet with a local Dr, who is a specialist in chemotherapy. Due to other recent medical problems such as Iron Deficiency, a faulty valve in my heart and a problem CT scan resulting in an Endoscopy, the chemotherapy meeting due in June has had to be postponed until late July.  My current understanding is that the ampullary cancer has been suspected for more than one year from other medical issues I have experienced but this means that it is likely I have had this cancer already for one to two years and the recent endoscopy confirms that it has not yet spread to other parts of the body? Given this background and my age, my current thinking is to have no treatment such as chemotherapy and simply to 'watch & wait' as I have done with the Prostate Cancer I have now had for 16 years and I am told that I will die with it, but not because of it? Finally, I send my kind regards and best withes to anyone out there with Cancer of the Ampulla of Vater and I would welcome any thoughts about my current plans above? Regards, NogBad (Male).