I just need to vent...

My father is in hospice dying of terminal cancer. Dealing with his illness is very difficult and it pains me to see a man who has always been so strong wither away to a frail old man, he is only 56. He is constantly in pain and has told me several times that he wants to die. He took a turn for the worse a week ago, and when he came through it he has been left even more severely weakened. He asked the doctors why did they let him live. He will not let them give him fluids, antibiotics or a stomach tube for feeding (he struggles to swallow) And at times refuses pain meds because he think the pain will kill him quicker- he has said this to doctors.  

On top of this I have estranged family members, who my father and I both dont speak to, trying to contact him, which is making him more agitated, and trying to contact me. I know that this contact has been initiated by my paternal aunt (whom we both are not in contact with) .

Im nearly positive my aunt is using my 2nd cousin to pump me for information in regards to my father via social media. I didn’t realise this at first and gave her a few details, as she claimed she was asking on behalf of her father and I find it difficult to be rude. But now she keeps asking about him every day and I don’t know how to politely get rid of her.

My father has been very clear in his lucid moments that he doesn’t want any family near him except for my husband, myself and his nephew.

 

  • It's hard to sleep when you have it all running through your head. It's hard to switch it off. Does she have chemo in the hospital or does she have a bottle in and get it at home? They might look at adjusting the dosages. Or suggest radiotherapy as an alternative if that's viable.

    Dads very confused today. He asked the doctor when he was going home. 

  • Awww I really feelfor your dad through all what is going on he still probably some where remembers his home  ,I hope it weren’t to distressing for you to see your dad confused coz uni it can be because my mum died of non Hodgkin’s lymphoma 10 years ago and I still remember how it was when she became confused at the latter stage of her cancer ,as for my daughter she has chemo every 2 weeks at hospital should be until autumn ,she’s already had radiotherapy and it didn’t work so I’ll have a long chat with her consultant on Wednesday because I’m not happy that she’s having chemo and her cancer symptoms seem to be getting worse, a good part of my day today is spending this evening with my granddaughter reading her school book with her and putting her to bed that always make my day that much better ,I hope your dad has a good day tommorow and u try keep strong as u can x

     

     

  • It is hard seeing him like that's because normally he would be sharp as a tack. Plus for some reason he'll respond to Drs, nurses, my husband and my cousin but usually ignores me when I try to help him. I'm trying not to take it personally lol. Even when he shouted at me today.

    Hes my best friend. After mum died we always made time to see each other no matter what.

    Wow every 2 weeks that's hard going. Your daughter is barely even coming round from the previous session and then shes going in for another.

    I'm glad you have your granddaughter to spend time with and focus on. It must be confusing for her too.