My mum had a stroke now terminal cancer

I’m 27 years old. My mum recently turned 60. On the 29th April she had a stroke while walking home and developed global aphasia. She has been in hospital ever since. Initially she was on the acute stroke ward, then moved to rehab a week later where she lost her appetite and developed jaundice, then the respiratory ward to drain off 4.5 litres of fluid from her lungs. She had an MRI and they found a tumour blocking her bile duct. On 13th May my dad, mum and I were told by three doctors that she had terminal cancer of her liver or bile duct and was likely to be on palliative care and they’d get her home ASAP and put us in touch with the hospice team. The same day, a gastro-intestinal doctor told me they weren’t sure she even has cancer and we were told prematurely. As you can imagine, a very horrific and traumatic rollercoaster of a day. She was moved back to the acute stroke ward. She hasn’t eaten anything for over two weeks and has been sick every day. She has had two failed ECRPs so no confirmation of cancer and almost went for a PTC which was decided against when the doctor realised we hadn’t been informed of the risks. Communication throughout has been excruciatingly bad which has sent our stress levels sky high. Was told today that there is a 40% chance she won’t live past 30 days if she has the PTC because the presumed bile duct cancer is so aggressive. If she survives it the PTC will extend her life 3-4 months. If she doesn’t have it, her jaundice will continue and the bile will create an infection. I’m finding it very difficult to cope with the shock of the news that I will lose my mum soon. Her inability to speak properly and lack of comprehension makes the whole situation so much worse. I’ve moved out of London to Exeter to care for her and am trying to work my job remotely while looking after my 80 year old dad. I feel under immense strain/stress and feel exhausted, can’t sleep well, have been experiencing a tight chest, shortness of breath and heart palpitations and don’t know how to cope. I feel tearful all the time. Have been on Sertraline 50mg anti-depressants since November (so before all this happened) for anxiety/depression. Most of my friends live in London so I’m struggling with not having face-to-face support most of the time.

  • Thank you Jenn we'll get in touch with them. 

  • Also try contacting your GP 

    I contacted pals in June abd they still have not replied hopefully you have more success

     

  • Three weeks ago my sister had a massive stroke,during blood tests they've now diagnosed cancer,But can't operate because she's too weak,She hasn't swallowed,eaten,or moved since the stroke,We can't visit due to covid,I do hope you've had some good news as I have noticed your post was October.I know how your feeling,It's just a horrible,scary thing to happen out of the blue x
  • I do hope things have improved over time,I'm just starting this awful journey with my sister,Stroke then cancer diagnosis within a week and just feeling shocked and helpless,It's now three weeks on and she still hasn't spoke, swallowed or walked ect  I hope things are better for you now

  • Rachel I am sorry that you are going through such a terrible time with your sister.  I hope that she starts to show some signs of improvement soon and they can offer some treatment. I lost my dad in November just two weeks after the post, he just didn't have any fight left-we miss him every day

  • I'm so sorry for your loss X The oncologist and the stroke consultant are holding a meeting this week as the cancer needs to come out but she is not strong enough for the op or treatment,Such a nasty bolt from the blue,Three weeks ago today! Cannot believe anyone goes through these two horrible things at the same time,Thankyou so much for your kind words and reply xx

  • I know this post was over a year ago, I just wanted to see how you are, I've just been through exactly what you have, I'm 30 and mum was 60 she went in with diabetes and then had a Stoke to only find out she had pancreatic cancer that's spread to liver within a couple of weeks she passed away after that news, so I only lost her on Wednesday and it was the worst experience of my life watching her deteriorate so quick and then seeing her after she had passed, I don't know if I'll ever get over this and I still don't believe that it has happened