Thank you. We are very frustrated and extremely worried waiting for the date for his second operation which has been delayed by two weeks and we still don’t have a definite date.

Hi I am just wondering how you are and how is your husband? My husband has had a ten and a half hour operation and now has an ileostomy. He has lost a lot of weight and will have chemotherapy when he has recovered in a few weeks time. He’s been very brave through a huge ordeal but is very frightened.. thinking of you xx

Hi my love, sorry I have not been online for sometime as have been fighting battles at the hospital and our own demons. Andys treatment still has not started and hopefully will do in the next week or so, there has just been delay after delay and it terrifies me, his chances are low for any good results at the best of it but with these delays.....?????? So sorry to hear of your husbands 2nd op, I had an ileostomy for a year odd  so I know exactly what he has had done and probably how he feels. I hated mine and would not look at it or care for it, in the end Andy got cross with me and told me it should be my best friend as it was keeping me alive and he would not lose me. It must be so difficult for him and for you. Main thing is he is to rest and gain strength for the treatment he is to have, he will need all the strength he can muster I am afraid and so will you my love. Times are gonna get tougher before they get better. I have kept you both in my prayers whilst I have been off line. When you are able do let me know how you are coping, "we" the ok one so to speak often gets forgotten in all of this and to a certain extent thats ok and as it should be but, we matter as we have a lot to deal with, we have to be strong for them and for the family and its not easy is it. Life is so very unfair eh......love to you and yours xxxx Karen

Thanks so much for your reply. I’m sorry you had to have an ileostomy . He is very down and finds it very difficult to deal with psychologically as well as physically. I am dreading the chemotherapy but also wanting it to start as that will be his main chance of surviving this horrible disease. I know that he has to get as strong as he can before chemo starts and that is not at all easy....he’s lost so much weight and muscle.

I am so sorry that treatment has not started for your husband and know how you feel . The waiting is so stressful.

i too have thought about you and what you are both going through whilst I have been off line.

look after yourself xxxx

Bless you my love, I know only to well how you feel. Andy was allowed out today for a few hours he wanted to go to the shops so we did, saturday in aberdden shopping!!!!! Anyway he cannot eat or drink at the moment but he wanted to buy me a coffee so we went and sat down and bless him he fell asleep. He is so tired and he is trying to carry on as normal as he can but he is itred, losing muscle etc . i sat and watched him and it broke my heart he is already a shadow of himself and i want to cry scream and shout but whats the point, , it does not change it does it.

Onwards that is what we will all do..... and thats it! Onwards to treatment and survival.... You are both in my prayers.... keep in touch you are not alone love to you xxxxx