Feeling Tired

Hi I'm 29 and my husbands full time carer he is 87 (yes I know there is an age gap but that doesn't matter to us). He has Advanced Prostate Cancer which has spread to his bones. He struggles with walking so if we do go out to hospital appointments we use the wheelchair. 

I don't drive yet I'm hoping to pass my test very soon, so we don't get out as much as we would like to but we have fabulous friends and neighbours who support us and my parents who have been fabulous I'd be lost without them I really would. 

Caring for someone you love with Cancer Is the hardest thing in the world to cope with, at the same time your trying to keep their spirits up it's soul destroying for you but you have to keep going because you love and adore that person and never want to let them down. 

I suffer with a long term illness myself Neuropathic Bladder Syndrome and Fibromyalgia so it can get tough sometimes well all the time but I find a way to cope because I love my Husband and want to do the best by him. We treasure every moment together and we laugh all the time. Life has it's ups and downs but we all find a way through for those we love.

 

  • Hi butterfly 7 sorry to hear about you husband I've got advanced pc. I've had it over 3 years now it went to lymph nodes, spine, ribs and pelvis, and one lung its not curable but you can live with it do you have his gleason score or psa, mine was psa 1581 gleason 8 stage 4 I live on hormone therapy, and now and again cemo hope things work out well.

    Billy

    P.s I struggle sometimes as well I've got a disabled wife needs care 24/7 she can't stand with out support,.. We've been married over 45 years wife is 14 years older than me again good luck,.. 

  • Hi Billygoat, Sorry to hear about your fight. It's not easy loving someone who is struggeling with Cancer :-( I'm lucky I can cope (just about) caring for my Husband. He is finding it harder every day to walk etc. 

    My husband is just on steriods now they did have him on 4 tablets called Enzalutamide which helped at the start his PSA was 84 and it shot right down to 7 but then it started creeping up again and they told us that wasn't working and to stop it and he's been on Steriods every since but everytime we go to a hospital in Shefflield every 2-3months they say his PSA is still rising. They said the next option was Chemo but because he was to weak to have it. 

    Last time we were there they said it had rised alot again and if it did again in a few months they'd have him in for a scan and I'm dreading that day. :( 

    Best wishes and thank you for not judging us on the age difference. 

  • Hi butterfly 7 again gleason score is the main check psa as mine can be all over the place gl6 means mainly in prostate over 6 it's starting to move to other places. Hope you can get him a bit fitter so he can have cemo mind you cemo can be nasty for some people some have no side effects at all, good luck,..

    Billy

    P.s they put me on hormone therapy to start with. I'll see if [@telemando]‍ or [@woodworm]‍ can talk to you 

     

  • The Doctor we saw at the hospital said they wouldn't give him Chemo as it would be to much for him :-( 
    plus his age doesn't go well for him really. I'm not saw what his PSA or Gleason count are as them ones where last year. 

     

  • Hi Butterfly

    Sorry to hear your husband has prostate cancer.

    I have over the years lost 12 people to cancer so I know what you mean about it being so hard. Having had cancer my self I found it easier being the patient as at least I felt I had some control.

    I had Zoladex (Hormone therapy) for two years along with 37 radiotherapy sessions and have had a very good result 

    I wish you and you husband all the very best, Brian

  • Hi Woodworm.

     

    I'm sorry to hear your story, I'm glad you had a good result with your treatment. I'm husband is just on Steriods now as he was too weak to have the Chemo and they said it would of done more harm than good. :( So we are just taking each day as it comes. 

     

    Best Wishes

    Amy

  • Hi Amy,

    Glad you have people who help support you as this does make a differnce. My family were very supportive and it helped me a lot. I read on here quite regular that when someone gets cancer their friends dissapear as the dont know how to handle it. Just when they need their friends.

    Take care, Brian