Feeling I am sinking

Hi everybody 

I spent the last hour reading posts and because lots of you seem to gain strength from others I though I should reach out too. 

I am an overall healthy 31 years old "girl", mother of a beautiful 3 years old boy and wife of a gentle amazing man who had been diagnosed with stage 3 (T4N1M0) bowel cancer in June 2016. 

He had a large (and successful ) operation without much sign left of it. (nothing in fact) then we went through 8 cycles of chemo which finished in Feb 2017.

Since he has 3 - 6 monthly blood test and yearly CT +6 monthly chat with the oncologist.

And this is my problem starts. I Am and absolute control freak. And this feels totally above my control (oh I was reading books borrowed from medical student. Which is probably done the exact opposite of what I hoped for) and I Am a forever pessimist  If there is just 1% of something can go wrong I am dwelling on that 1% rather then the other 99%. And I know that's the reason of why I am feeling so anxious all the time

I am keep looking at my husband for sings of him deteriorating. I am planning (in head) of what and how to be a single mother, a widower, a broken person for the rest of my life. What will I do if his next scan shows something  or his blood test is abnormal. 

I know deep down that is selfish sometimes I think it's insane and ridiculous and bad on every level. But this is how I feel. And I really don't want to feel like this. It makes me and probably him too feel misarabel. That's why I didn't tell anyone. Not even to my closest. 

After his scans I am normally fine for about 6 months then these horrible feelings start creeping in.

You probably guessed bimy now.... His next oncology appointment is just days away and he is currently poorly (according to him its a flu - so. sore throat and fever) but for me is relieving the chemo weeks and imagining the worse.

So here I am, sinking into this weird "dream" like  nightmarish existence....

I am often finding myself hiding away. OR if not I am keep asking him for symptoms and how he feels.....enjoying life is almost completely impossible.

I am otherwise alway planing and trying to make our life better and more enjoyable, like buying a new house  getting on with a biking project (this is what makes me happy ) but I feel if  I make plans for for example retiring by the sea (mine is coming up in 2052 lol) it won't happen anyway 

I am really lost for what to do?

I am a very rational person and always try to solve the root cause of the problem..I know that councellig could be an option but the root cause is the cancer and the development and control of that. But we can't have scans every 3 months + that would give him cancer (according to his oncologist as well)

Oh I am so sorry for the rant. I must sound weird but just writing this down helped (for now) I know it's sounds its all about me but I think I might need help so I can be here for my family. (they would not cope without me, his words not mine.) So I must get well to do that. 

Has anyone had anything similar. What did you do? Thank you and sorry  

  • Hi there and welcome ...

    Oh my ... your going though a nightmare every day ... I know I've been there .. so this isn't about cancer but I'll tell you my story, and hope it may help you a tad ...

    Years ago, my 14 year old son got diagnosed diabetic... everything changed .. I cried every day, the more I learned about it .. blindness .. amputation ... hypos ... etc .. I sat out side his bedroom door, so I could hear him breathing ... he snapped me out of this by one day saying mum .. I can cope with the diabetes but I can't cope seeing you cry every day ... 

    Well I pulled myself together, went on the computer and learned all I could about keeping him safe .. and what to do for hypos, and how to balance food to keep his blood sugar level as poss .. his bedroom was like a hospital room with insulin , injections , blood testing kit .. and we had to mix the insulin with slow and fast acting .. the thumb tests done 4 / 5 times a day, where so hard as the needle was thicker then and his fingers soon got sore .. 

    Yes I looked like I was coping to others ... even started a kids diabetic club .. but a few years later, one early morning , l heard banging in the kitchen .. running in there , I saw my baby (he'll always be my baby) out cold on the floor .. blood everywhere .. where he'd knocked his head going down .. fitting and then just stopped .. I didn't know if he was alive or gone .. l got his emergency injection .. mixed it.. did that in his leg .. called the ambulance and my brother in law .. opened front door so they could get in .. went back and sat with him .. just praying he'd come through ... he did ... 

    But I got what I know now was post traumatic stress syndrome ... couldn't stop seeing it all and reliving it .. he had a few more over the years .. left home to work in London with his bro .. but everyday just waiting for a call saying he had one and was gone .. every day l felt like you .. every day in my head , l could only see that sinario .. tried to think how id cope .. how life would be without him .. it took over my life ..

    Then I was on u tube .. and they were talking about this sinario ... it said if we feel like this, then we waste every day .. we loose them in our heads every day ... and to realise anyone could die .. go out one day and never come back .. no one is safe .. so we can either live our lives in dread of what might be .. or we can live in the day ,.. and make the most of every day we have with them ... nothing in life is safe ... 

    So when I got diagnosed with a grade 3 breast cancer, I put this theory into practice... I live in the day .. I make as many memories as l can .... I don't think of tomorrow/ next month / next year ... just today .. take every problem as and when it comes up .. and deal with it then ... together .. 

    So you can do what I did .. and every day will overwhelm you .. or you could say .. wer all here today .. let's make the most of it ... tomorrow will come .. and one day at a time go on ... 

    My baby .... my son ... is now 37 .. two amazing kids ... a lovely wife and home ... and he just lives in the day too .. no one knows what tomorrow will be .. but we can make the most of today ... and live life to the full for as long as we are blessed to ... so come on, join the today club ... together well kick cancers butt ..  Chrissie

  • Good luck Chrissie and God bless you and your family. May the Angel's of God give you strength and comfort every day. Miracles DO happen you know. X