Please help; unusual situation with Step Mum

This is grim reading, probably not for the squeamish. I’ll try and keep to the salient points.

My lovely step mum (63yrs) has aggressive breast cancer and isn’t expected to see the end of the summer. The tumour is immense and sits on her chest about 1 and a half times the size of a rugby ball. She also has lymphedema in the arm on that side filled with fluid. She can still get out, take dog on very short walks, go to supermarket etc, all with help and this is very important to her while it’s still possible.

In the last few weeks the tumour has broken through the skin on her chest which was inevitable given its size and rapid rate of growth. The main problem with that is that every couple of hours the wound floods like a running tap with clear fluid completely saturating the dressing and then starts going everywhere. The fluid can run out for up to an hour and they sit there mopping it up with tissues. If it happens at night it wets her PJ's, the sheets etc.

The doctors think its leaking from the lymphedema, it’s not an infection and it can’t be stopped. They also haven’t seen this before so don’t know how to effectively help. So, the help we need is: how can we dress this wound so the liquid doesn’t just come through the dressing and go everywhere meaning that she can’t leave the house. The sterile dressing (which is a large round dressing the district nurse provides but never leaves them with enough) must be the first line of defence but then what?

She’s feeling self-conscious enough and we desperately want to help solve this issue without further humiliation. Any ideas?

Will also post in other areas so apologies if you see this more than once.

 

Many thanks

 

 

  • Hi I don't know if this will help you but when I was having kemo I was bleading a lot from back passage hospital give me some big thick pads (about 250mm wide & 400mm long I'm afraid I don't know proper name of them District nurse should know about them or your doctor certainly better than tissue they might even tape on somehow. Good luck best wishes.

    Billy 

  • Hi Switz, I wasn't aware of this condition until reading your post, so had a quick google to see if there was anything that might help. thelymphielife.com/.../ certainly shows your step mum is not alone. There are comments at the end of the article which also may give you some ideas. It sounds like some people have specialist massages to help ease the swelling, making it less likely to leak. 

    It's a shame the nurses don't leave more dressings. Hope you find something suitable.

    regards, gamechanger

  • My mom has recently revealed to us due to being admitted via A&E that she’s had a lump for 8 years and not told anyone. Hers too has broken through the skin (they call it fungating) and also has a district nurse going in daily to dress it. Hers leaks most days and is blood stained. Apparently they never heal. Aside from more dressing I don’t know what to suggest. We have her first consultation for biopsy and ct scan results Thursday where we will know more