Hello everyone, I have being a frequent visitor to this site for a few months but never posted until now. I used to spend my time looking on internet at clothes lol...now I am forever googling Bowel cancer!
My darling Mam (54yrs old) was out of the blue diagnosed on the spot with Bowel cancer after a colonoscopy (we thought the dr’s were Investigating irritable bowel.
Her tumour was sigmoid colon approx 5cm x 3cm this was 10th August after a ct scan to reveal it hadn’t spread (I thank the lord everyday) she went on to to have successful surgery on 12th August
the miracle surgeon managed to do a re join of her Bowel so no stoma needed.
She then went on to have the tumour tested and the outcome was than it had not spread to any lymph nodes. She had 20 removed and it was not in any however it was noted there was a ‘spur’ present and basically it meant although it had not travelled to meet the lymph node it was on its way to....
so so basically mum was offered 3 months of chemo
xeloda capecitabine
2 weeks on and 1 recovery week repeated four times.
Tjis is them brought us to January 2019.
Mum had had a ct scam Again and cea blood test both came back fine
we were over the moon
mum was asked to take part in a clinical trial and once she saw another dr he said did she want to have another 3 months of chemo because the guidelines in our area have changed and that 6 months is the recommendation not 3
so she cancelled her holiday and began back on the chemo the following day she had 2 more sets to do
she has been really poorly with the last and her hands and feet are so sore she is currently having an extra week break to recover and the plan is for her to carry on again from next week and have the last two sets and finish at the end of may 2019
has anyone else being through this?
with the guidelines changing mid chemo?
i know this is not about me but the terror and fear this has brought is horrific
I am nattered to death and physically and mentally worried to death this cancer will return somewhere else in her body.
I now suffer with panic attacks (I have never had anxiety etc but This worry is awful. Just want the 5 year mark to pass!!
Sorry for ranting on
I just want a few ppl to come forward and say this happened to me x amount of years ago and I am still cancer free!
Thanks for reading
p.s I understand there are people so much worse off than us but it’s my mam and I just adore her xx