Mum recovering from Bowel cancer

Hello everyone, I have being a frequent visitor to this site for a few months but never posted until now. I used to spend my time looking on internet at clothes lol...now I am forever googling Bowel cancer! 

My darling Mam (54yrs old) was out of the blue diagnosed on the spot with Bowel cancer after a colonoscopy (we thought the dr’s were Investigating irritable bowel. 

Her tumour was sigmoid colon approx 5cm x 3cm this was 10th August after a ct scan to reveal it hadn’t spread (I thank the lord everyday) she went on to to have successful surgery on 12th August 

the miracle surgeon managed to do a re join of her Bowel so no stoma needed. 

She then went on to have the tumour tested and the outcome was than it had not spread to any lymph nodes. She had 20 removed and it was not in any however it was noted there was a ‘spur’ present and basically it meant although it had not travelled to meet the lymph node it was on its way to....

so so basically mum was offered 3 months of chemo 

xeloda capecitabine 

2 weeks on and 1 recovery week repeated four times. 

Tjis is them brought us to January 2019. 

Mum had had a ct scam Again and cea blood test both came back fine 

we were over the moon

mum was asked to take part in a clinical trial and once she saw another dr he said did she want to have another 3 months of chemo because the guidelines in our area have changed and that 6 months is the recommendation not 3 

so she cancelled her holiday and began back on the chemo the following day she had 2 more sets to do 

she has been really poorly with the last and her hands and feet are so sore she is currently having an extra week break to recover and the plan is for her to carry on again from next week and have the last two sets and finish at the end of may 2019 

has anyone else being through this?

with the guidelines changing mid chemo?

i know this is not about me but the terror and fear this has brought is horrific 

I am nattered to death and physically and mentally worried to death this cancer will return somewhere else in her body. 

I now suffer with panic attacks (I have never had anxiety etc but This worry is awful. Just want the 5 year mark to pass!!

 Sorry for ranting on 

I just want a few ppl to come forward and say this happened to me x amount of years ago and I am still cancer free! 

Thanks for reading

p.s I understand there are people so much worse off than us but it’s my mam and I just adore her xx

  • Hello Jojonrbrad

    Welcome to the forum. Sorry to hear that Mum was diagnosed with bowel cancer although it was good to hear that her treatment has been going well up until this last cycle of chemo. 

    Soreness, tingling or pain in hands and feet is a common side effect of a number of chemotherapies. We've got some information here that may be of interest. If the problem continues or gets worse then do make sure that Mum's team are aware of it so that they can offer any appropraite support. 

    In terms of guidelines changing, this is something that can happen on a national or local level at any time. It can be for a number of reasons such as changes in NICE guidelines, research results, funding. It just so happens that your local guidelines have changed whilst Mum is undergoing treatment and there will be many other people in the same situation as her. I would try not to read too much into it given that Mum's last scan and tests results were good news. 

    It's understandable that you're feeling the way you do. It sounds like you and your Mum are very close and you obviously love her very much. Of course you would be worried about what the future holds. Anxiety arises when we worry about the future and what may, or may not, happen. It may be worth having a chat with your GP, or practice nurse, about some techniques to help you manage this such as mindfulness or CBT. 

    And of course, you are always welcome to come and post here any time of the day or night. Sometimes it can be very cathartic to just get your concerns and fears written down. 

    I hope that Mum feels better before her next treatment. Do keep in touch and let us know how you're all doing. 

    Best wishes, 
    Jenn
    Cancer Chat moderator