BCG Side Effects and Complications

I'd like some advice and info from anyone who can help. My father was diagnosed with Bladder Cancer in November. Lives in Holland so it's difficult to get answers to my questions. First TURBT was in December all went okay, another 4 weeks later to check for scarring etc. Then the BCG Treatment started, 6 week course. The first 3 were fine and then he started getting really sick with the treatment. Vomitting, high fever, weakness, loss of appetite. He was given antibiotics but same thing happened on the 4th and 5th treatment. By the 6th treatment he was so sick he was not able to dress himself as his been so weak. He was taken to A&E and had a seizure in the waiting room, stayed one night was given more antibiotics and fluids and then sent home. They said they won't be continuing with the BCG but won't know the options until we get some results in a months time but his in such a bad way. Struggling to walk with joint pain, very down and depressed as he needs so much help and support with simple tasks. Is this normal after BCG? How long will he be feeling like this? Has anyone had a similar experience? What other treatments have you had and were they successful. Sorry for so many questions, I just don't want him to suffer anymore.

Parents
  • I had 15 installations of BCG in 2019/2020 when at the fifteenth installation the catheter cut me and the BCG went straight into the blod stream as a result it made me very ill and I was admitted back into hospital for a week. What went undiagnosed was that over the past year the BCG has given me a Tuberculosis varient and attacked the Thorasic vertebrea in my spine at T11/T12. Ths now needs surgery to bolt and pin the spine before it collapses. They stopped the BCG and I am now on special antibiotics for nine to eighteen months. I had all the symptoms you have had plus night sweats and then it affected my liver. Be sure you get tham to check for spinal issues if you get back pain which may mean a scan and biopsy.

Reply
  • I had 15 installations of BCG in 2019/2020 when at the fifteenth installation the catheter cut me and the BCG went straight into the blod stream as a result it made me very ill and I was admitted back into hospital for a week. What went undiagnosed was that over the past year the BCG has given me a Tuberculosis varient and attacked the Thorasic vertebrea in my spine at T11/T12. Ths now needs surgery to bolt and pin the spine before it collapses. They stopped the BCG and I am now on special antibiotics for nine to eighteen months. I had all the symptoms you have had plus night sweats and then it affected my liver. Be sure you get tham to check for spinal issues if you get back pain which may mean a scan and biopsy.

Children
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