Feeling alone

So my 64 year old husband was diagnosed with long cancer spread to 5 other areas including 3 masses in brain. Because he has been diagnosed with lung cancer that has spread we have not got anyone at our local hospital that deals with brains, and it is the brain symptoms that seem to be causing the most issues. We have been told it is terminal and that life expectancy is less than 6 months, but everyday things seem to be getting worse, we had managed to calm some of the headaches with steroids and as he was doing well they cut them down, however have had to raise dosage again, his memory is deteriorating daily and he now seems to have little awareness of steps etc, has fallen a couple times in last few days. He has had one lot of a dual chemo last Monday. We have a big family holiday planned for first week in April but the way he is going downhill worries me. He is shattered but steroids are maybe what are keeping him awake. Any advice? Am I being pessimistic in thinking things are not going well? We have no care coming in at moment and I am desperately trying to keep my job going as I am only 51 and will need to keep working. But am shattered as when he is up in the night so am I, then going to work. When do you know you need or qualify for help?

thank you for any responses 

  • Hi there ...

    So sorry your going through this heartbraking time at the moment .... if I were you I'd get help in place as soon as possible... Marie Curie are there for terminal patients and their families.... give them a ring .. if you go on their home page you'll find lots of info and their number ... 

    McMillan have a benifits advisers who can help you get all the help your due ... I'm sure any extra money will come in really handy now ... they can get you the forms and if you need help filling them in, they will do that too ...

    Get in touch with your district nurse ... as I think she may have some good advice too .. please do everything you can befor it all gets overwhelming ... as you may need to have a break from work at some point ... so you'll be entitled to carers allowance too ... you may even qualify now ...

    If your holiday is for this country, he may be o.k ... if it's not too far .. if it's abroad, think very carefully .. I couldn't get covered for my cancer ... they wanted thousands more then the holiday .. I took the chance but my cancer was contained ... I'm sure you'll know more as the weeks pass ... but that may put a huge strain on you and hubby ...

    My heart goes out to you ... please let me know what help your offered as it may help others that need advice too .. sending you a vertual hug ... Chrissie xx