Helen

Well where to begin. My beautiful 37 year old son has finally being diagnosed with stage 4 glioblastoma multiforme. As a mother this is totally unbelievable and I'm desperate for him. He is today going to hospital in London to discuss rad/chemo treatment. His mood as you can imagine is rock bottom and his father and I are devasted for him and ourselves and of course his beautiful girlfriend sister and niece. Unfortunately surgery is not an option as one of the tumours his deep inside his brain. I will just say at Christmas he was perfectly fine and well with no symptoms whatsoever apart from a slight tingle in his right hand which was thought to be due to his newly acquired dog pulling on him on his lead. Being in the nursing profession myself for over 30 years I more than anyone knows the outlook is very poor for my beloved boy and prognosis is grim. Help please a heartbroken mother with any support help. 

  • Oh my ...

    So so sorry .. as the mother of boys, know how precious they are ... this is the worst pain we'll ever go through .. my youngest has been type one diabetic from 14 .. and I've nearly lost him a couple of times to hypos ... one where he was passed out in the kitchen, and blood everywhere where he'd knocked his head falling .. l didn't know then if I was too late .. thank God, I got to him in time ... but he's had a few close calls ..

    So I've lived with that fear every day ... and l can take everything cancer threw at me ... but leave my babies alone .. so my heart goes out to you ... this is gonna be the hardest fight of both your lives ... try not to look to far ahead ... put your mum head on... he'll really need you now ... it isn't about being strong .. it's being scared witless... but still doing what you need to do ... that's being brave ... try and take every day, every problem one at a time ... as the whole picture is too overwhelming....

    Always here if you want a vent, or chat ... sending you a vertual hug. . Chrissie

  • Helen your heart must be in shreds    I read your post and really had to reply  I can't even begin to imagine the pain and fear you have  We would all give our lives for our children  and put ourselves in their place instead without a second thought  You must be in turmoil     my husband was diagnosed with cancer last September and is now on palliative treatment only  He's really poorly now in that short time. He's only 57 and I'm younger    I came on here tonight because I needed to just read other people's stories .  I have coped going along so far  probably in denial or disbelief.   But tonight it has hit me    I have sat on my own and sobbed and howled like I never have in my life.   There is no getting away from it and there's nothing I  can do  It has just become reality after plodding along in a strange dreamworld  what on earthwwill I do  How can this happen to anyone ? And to have it happen to your child I can't contemplate what that would be like  I am really sorry .It is horrendous. I know my story is totally different to yours but I just wanted to tell you that you are not alone and I'm sending all my love and what bit of strength I've got left.  This world is not fair.   My reality has sunk in tonight      Please look after yourself as well as your son  Xxx xxx  

  •  

    Hi Helen,

    Welcome to our community, although I am so sorry for the reason you've joined us.

    This is every mother’s worst nightmare, made even worse by the fact that you know what the prognosis is like, due to your profession. I am not at all surprised that your son’s mood is at rock bottom. The poor lad should be looking forward to having his whole life in front of him, not facing this. How I wish that there was something that I could say or do to help you all, but sadly there isn’t.

    As the mum of a son myself, my heart goes out to you. Is London a local hospital, or does this involve some travelling for specialist treatment?

    Do please keep in touch as there is always someone here to talk to.

    In the meantime, I am thinking of you all and, hoping and praying for that miracle we all want to see,

    Kind regards,

    Jolamine xx

  • Hi melamine

    Thanks so much for your lovely thoughts. It fills my heart and restores my faith in the human race that people actually do care.

    Yes London hospital is local to him and his fiancee is taking him to all appointments. 

    In my heart of hearts she's brilliant and loves him dearly as he does her but I so wish he was home with his father and I. Selfish I know. 

    I can only hope that the treatment he's about to receive will help him and keep him as well as he can be for as long as we can have him. 

    With many regards to you and your family 

    Helen 

  • Hi

    Just a quick reply to thank you so much for your thoughts. It means such a lot to me.

    Thanks again

    Helen x

  •  

    Hi Helen,

    I can fully understand how you feel that you would rather have your son at home with you both at the moment.

    It must be very hard for the two of you to stand back and let his fiancee take him to his appointments. Don't feel that you are being selfish in feeling this way. This is only natural.

    How did he get on last week when he went to discuss treatment options?

    I do so hope that this will work for him. Please keep in touch and let us know how he is getting on.

    Kind regards,

    Jolamine xx