I’ve never posted on anything like this before so I’m just going to start off about how I’ve come to end up writing this.
On 16th December 2018 my mum called an ambulance as she thought she was having a stoke, her left side went weak, by the time she was at hospital she had started to have seizures so she was sent straight for brain scan. Within the hour we were told they had found a mass on her brain. She was sent for MRI which shown a 4cm tumour on her right parietal lobe which is inoperable. Before this diagnosis my mum was a teaching assistant working full time like any other independent woman.
On 31st December 2018 she had a biopsy to find out what type of tumour, it was a week or so later we got the heartbreaking news that it was glioblastoma multiforme wild type, since then my mum, 58, has deteriorated rapidly. She has spent most of the time in a hospital due to left side weakness leaving her with no mobility at all, due to weakness worsening another mri was done which showed growth to 5.1cm, she has had 3 weeks or radiation and temozolmide, finished that 2 weeks ago. She has still got no feeling in her left but I feel she’s getting worse, she had another mri due to more weakness that showed a cyst and swelling again around tumour (no change in size). This has now effected her speech (slurry/slower) and memory getting worse. The process of getting her home (to my house) has started but is taking its time, a care plan and equipment needs to be delivered first.
I go into hospital most days and the days I don’t my step dad does, I have 2 children at home (10 and 13) and my husband, I have recently stopped working due to this situation. My mum will be coming to live with us and now I am absolutely terrified that I’m not going to be able to look after her even with the help of district nurses but she is so looking forward to coming home I don’t know what to do.
So I suppose I have 2 questions, how do you cope?
And
is thsi a similar story to anyone else on here?
Sorry for the essay
thanks for reading xx
