My Mum is living with stage 4

I am 20 and two years ago my mum was diagnosed with stage 4 secondary Breast cancer after an initial diagnosis & all-clear 6 years before. It’s has spread to her bones (leg, back and shoulder) and other areas.

My family have been dealing with this for two years now but recently I have been struggling more and more. My Mum raised me and my sister as a single mother- she is the most incredible person I have ever met, she is incredibly brave and strong and the best mum you could get. When she was diagnosed I couldn’t bear to leave her side but now I am at Uni 3 hours away and I only see her every few weeks. She lives alone, while has the most amazing support network around her I feel so guilty and sad every second I am not there. 

She has had a course of chemo and is currently on a new medication. It is difficult because day to day she is fine- she has some pain but no real practical difficulty yet I know she is so sick. Also, she was originally given 2 years, which we’ve passed and so now I feel like I am counting down the days until something happens.

she is having regular scans and tests and it is currently more or less controlled- but I am really worried it is spreading. Recently her memory is deteriorating massively and she is often confused and so I am worried it’s may even have spread to the brain however there is no way of knowing at the moment as the scans are restricted to her abdomen and chest. 

Essentially, I really need help understanding the possibilities and while I know it varies massively person to person I just need tin know what might be going on. I am not ready to lose the most important person in my life and want to know if I should be home with her  or doing more- I feel so useless. 

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    Hi Leak,

    I am so sorry to hear of all you are going through with your mum. Have you or your sister mentioned her confusion to any of her care team. I would expect her care team to run further tests, such as a brain scan, to see if there is any involvement in her brain. I am not a doctor and can only talk of my experience in caring for both of my parents and both of my parents-in-law, who I looked after.

    What you describe is pretty typical and I don’t see why they cannot do a brain scan to confirm or deny involvement. I found that all became confused with my own mum, after she had coped with primary breast cancer for12 years. Tests confirmed that she had secondary cancer at this stage and there were metastases in liver, Lungs, brain and bones. She didn’t last very long after this.

    I am thinking of and praying for you all and wishing you well. It is a hard road that you are travelling, but you will find the strength to see this through.

    Kind regards,

    Jolamine xx

  • Hi, thanks for your reply.

    we haven’t mentioned anything- mainly because we both live a distance away so aren’t seeing her or her doctors often. I don’t feel I can ask my mum over the phone or in any situation recently as she is so strong and feels so good at the moment I don’t want to worry her. I don’t know who to tell, especially as it’s just a worry and I don’t know for sure.

     

    thanks again for your kind words and sorry to hear about your own struggles.

     

    I