My daughter who is 21 was diagnosed with terminal cancer 2 years ago. It has been a roller coaster few years basically she developed anorexia as a way of trying to control things and now weighs half of what she should at 25kg. She isn't able to have any further treatment just pain management.She was admitted to hospital at the beginning of Dec. Last year and we were told to expect the worse. Since then she has improved enough to be deemed not to be an inpatient as she's not receiving treatment. However her deteriation physically and side effects from medication means she sleeps most of the time and is unable to stand unaided or walk any distance. She has to be taken to the toilet in a wheelchair. The problem we face (as if terminal cancer isn't enough) is she's deemed too "healthy" to be kept in hospital, we don't have the facilities to accommodate her at home she was previously sharing a room on the 3rd floor of a 3 storey house with her 16 year old sister. Even if we juggled rooms so she had a room to herself all the bedrooms the bathroom are on the top floor. We have been told she can be brought back from hospital and transported to this room but there is no option for her to leave. We have contacted the local council about adapting the house for her but as she is terminal and may not live long enough they aren't willing to help with adaptations. However because she "may" live longer than a few months she can't be discharged to a hospice. The hospital now say she will be classed as homeless if we cant bring her home. I feel so lost as nobody seems to have an answer Is there really no options?? Another thing they said is if she was older there would be more options but due to her age there are no other facilities that could accommodate her. Sorry for the long post just feel at my wits end.
