Hi I messaged a bit ago this is where we are at at the moment

Hi all I’m new to here,but at my wits end.

im Going to try and keep it  as short as possible,but sorry if I end up babbling.

my mum has copd,you will see why this is relavant.Fo quite some time she was unable to chew any meat ir swallow,had chronic heartburn and a funny shape at the front of her tummy,she is only 67.

my mum was sent for the camera down her throat in September,we waited and waited for results,I phoned hospitals,doctors only to be told no news is good news (WRONG) It has taken 3 months on the 14 December we were told my mum has pre cancerous cells,no one  knows why it took so long for the results.

In the 3 months we waited for results my mum had been admitted to hospital around 5 times for a week or 2 weeks including resus,as her sats were dropping all the time sometimes as low as 74.and that was only because I kept ringing an ambulance,each time she had to go through A&e sometimes on corridors for 12-14 hours,during these admissions she was asked if she has ever been told she had cancer,(ABSOLUTELY NOT) was her reply.

when we got the results in dec (pre cancerous) another biopsy was arranged for the 15th January (again still no results,as they want to send her for a pet scan first) pet  scan done on 2nd February (still no results) when we arrived back at my mums from the pet scan there was a letter there advising my mum that she had missed an appointment for arthritis and they have recently been notified that she has cancer of the oesophagus (SOMETHING WE HAVE NEVER FORMALLY BEEN TOLD) I have got the letter as we were told the pet scan results would be with is by the end of the week (last week) I presume now to see if it had spread anywhere else,my sister have decided not to break the devastating news until we have the pet scan results rather than have to tell her she has cancer of the oesophagus and again if it has spread anywhere else.

we do feel very let down,since the biopsy in September,some of my mums hospital admissions have been for chest infection,pneumonia even ecoli she was discharged from hospital with ecoli,resulting in a nurse calling at her home every day fir a week to put a drip up beside her bed for one hour then go.

Apart from that my mum has seen no doctors no nurses,she is in bed most days eating very little and sleeping a lot,it’s like she’s been forgotten about.

i do believe that the doctors knew this was cancer when they gave her the pre cancerous results in December as he was going off Septembers biopsy,although her discharge papers from hospital in December clearly as Carcinoma of the oesophagus (again this was from Septembers results as she had no other tests until 15th January.

Hopefully we will get answers soon then she can start to receive any treatment she needs.

Hopefully we might get the results from the pet scan tomorrow x

also there is no medical team or doctors or nurses looking after or even seen my mum