I noticed no-one had replied to your post yet Sue so I just wanted to quickly post to welcome you to the forum.

I'm sorry about the latest development on your husband's journey. I can't imagine how difficult it must have been finding this out but you are not alone as many of our members have experience of receiving similar news so will understand what you're going through at the moment and will hopefully be along soon to offer their support and advice.

In the meantime try to take things one day at a time and keep chatting to us here on the forum if you find it helps.

Kind regards, 

Steph, Cancer Chat Moderator

Thank you for your kind message.. I did wonder if I would get any reply.. it's the lack of sleep at minute as John has a chest infection.. so suctioning every half hour sue

Hi. I’m so sorry to hear about your hard journey. I myself was diagnosed with a rare incurable brain tumour. Stage 4. Had 2 brain operations, radiotherapy and hemp all in the space of 20 weeks. Iv been out of treatment since mid July and tumour is responding . However its so aggressive it could change very quickly. So constantly living with the fear of ‘I might not be here next month’. Feel like my life hangs in the balance. It was recently mentioned to me about palliative care team helping me. Now this made me panic as incurable doesn’t mean terminal. I really know how scary that t is and how hard it is for loved ones. Do you have a maggies cancer which could support your family or other cancer support. Get any support you can. Charities, online help. I really do wish you all the best. Sending positive thoughts. 

Thank you for positive and helpful reply.  I can not imagine what you've been / going through. But I do no it's a living nightmare.  The palliative care team are contacting me this week..we do have a maggies but not close by..my husbands cancer is aggressive as is yours. His fear is choking to death. I must admit,  we had the same panic, it's the wording.. incurable/ terminal.. it's a waiting game as they don't no how long he has... I wish you all the look for your future,  and thank you again for your support..

Hi Sue....so sorry to hear the diagnosis that your husband has been given. You will be in a turmoil trying to make sense of everything. I hope you have support from the pallative care team .I am caring for my mother in law who has lung cancer and brain mets . The district nurses that monitor her diabetes are really good , we now have a Mcmillan Nurse and pallative care team in place for when we need them ..which i do think will be soon.

Please take care and i am thinking of you and your husband xx