My mum - not eating

 

My mum was diagnosed with cancer 10 months ago. She has terminal bowel cancer. It has spread to her liver and lungs. She has been on palliative chemotherapy every two weeks and has 17 cycle so far which she has coped with very well. The only side effect has been the chemo fog where her short-term memory is extremely poor.

However, my dad died on New Year’s Eve. He was her main carer.  My sister and I are there with her most of the time and stay over  

Unfortunately over the past week we are unable to get her to eat anything she is now even refusing fortisips. It is so hard to see her like this. I understand that she is grieving but I’m desperate to help in anyway I can. I just don’t know what to do and wondered if anybody had any advice or experience that would help. Her personality also seems to be affected. I get that she is very angry at the moment with the way everything hears and I accept that but just need to do anything I can.

I am going to speak to her nurse but she has told me that I am not allowed to. However I still well that any help that anyone can give would be appreciated. Thank you.

  • Dear RachelM, I am so sorry that your sister and yourself are having such a sad, hard time.  Is your mum willing to talk to you about what she is feeling?  Sad though it is to hear, she may feel that she just wants to go and join your dad.  While medical staff cannot give information to family members without the consent of the patient you could ask the nurse if he or she feels that your mum's personality is so affected that she is not rational - I don't say this is the case and of course you are in the best place to judge.    I hope your mum's anger is not directed at your sister and yourself - more likely she is angry at the turn her life has taken (and regrettably that is not an irrational response).    It may be best - if painful - to listen to your mum and not try to change her mind.  If she sees how much you love her and the fact that you will go along with whatever she wants she may begin to feel it wrong to want to leave her children.  But of course this may not make any difference.  Sorry I cannot really help!  Annie 

  • Hi [@RachelM]‍ 

    I'm so sorry for your mom and your dad :'( 
    Unfortunately, I have no good advice for you, I'm just a 25-year-old girl with few experience and knowledge of medical care, but wanted to reply to express my condolences...

    I think that if I were you I would try to speak with the nurse or the doctor in charge of her process to know what she should eat and any tips... Then I would try to persuade her in a calm way, although I understand is easyer said than done... Good luck with your mom and I'm very sorry that you have to go through this...

    Btw, my boyfriend is a terminal colon cancer with liver mets... He's 43 years old (way older than me, but still, so young)... I'm very sad... He did chemotherapy that didn't work well on the liver than radioembolization to stabilize the liver mets, but during this time without chemo, the tumour on the colon grew... lThursdaysday he had to go to the hospital in an emergency because he had dhyarreia with blood and stayed there for 48h in observation... He is so weak at this point, and because he was afraid of having a similar episode, he would refuse to eat, like a child...His parents are the main carers, and like you, they struggle a lot for him to eat... He is very angry with the situation and doesn't like to follow "orders". In the past days has been drinking tea with sugar and eating a bit of cooked smashed apple... He's going tomorrow to the oncologist, maybe they will tell him to do more chemo, like your mum or something... I don't know, but I'm very scared... :/ 

    best of luck to both of us...

  • Hi Rachel

    I am so sorry to see you are in such distress, what a terrible time for you. I send you my sympathies.

    I wonder if you have any care from a local hospice or from Marie Curie nurses? Sometimes the focus is so much on the patient that the carers forget they need support too, in order to stay strong for their loved ones.  You are grieving too.

    When my Mum had incurable bowel cancer not long after my Dad died from cancer the hospice nurse understood the emotional and pratical pickle my sister and I were in and they talked to my Mum both for herself and for us. It was a massive help.  Anger is normal in the circumstances and it needs to be expressed. But maybe not at you?

    I hope you can get a professional to be alongside you at this difficult time. You have a right to be supported too.

    Sending warm wishes and a big virtual hug

    xxx