Bowel cancer

Hi there,

My 82 year old Dad had been on and off poorly for a few months. On the 28th December last year he eventually went to the doctors who insisted he went straight to A and E. I took him straight there and whilst he was there he was diagnosed with an irregular heartbeat. A CT scan was carried out to check for blood clots on the lung. No clots were found but instead enlarged lymph nodes on his lungs and an enlarged spleen. A few weeks later another CT scan was carried out and a few days later a consultant called with the terrible news that he has enlarged lymph nodes in stomach and bowel and also a thickening of the wall of the bowel and unexplained mass. He is too ill for the necessary colonoscopy which means he can't have treatment as the doctors don't know if it's his non Hodgkins lymphoma  causing it or bowel cancer. We had the call on 18th January and since then Dad has rapidly deteriorated. He is not eating, has no energy, stays in bed 99.9% of the time and sleeps a lot. He says he wants to die. He has been prescribed steroids and morphine to help with the symptoms and pains. I am caring for him and my 80 year old mother (who my Dad used to look after). They have too much in savings for social services to help. What kind of care could be provided by  private company? Can Marie Curie or Macmillan help? I've spoken to various doctors, health assistants etc. I just want to do the best for them. I'm absolutely devastated yet it doesn't seem real, like I'm playing a part in some awful film. 

Can anyone advise me how I can be strong and make sure I'm doing everything I possibly can xx

  • Hello there BlairM; I am so sorry about your dad.  I am shocked that nobody has given you information or help in these circumstances.  Yes, MacMillan or Marie Curie would help.  I don't know which is best but ring one of them and if they can give immediate help grab it with both hands.  You should not have to be coping with this on your own.  I have just checked their websites.  You can reach MacMillan seven days a week 8am-8pm on 0808 808 0000;  Marie Curie on 0800 090 2309 Mon-Fri 8am-6pm and 11am-5pm on Saturdays.  These are Freefone numbers and these are charities.  Ring them as soon as you can as you need and deserve help.    I would be pleased if you would let us know when you have done this and what is happening; you don't have to of course but I am concerned about your circumstances.   You must be having such a very difficult time.  Annie

  • Thank you so much for your reply AnnieLiz. A doctor is coming out today to send if there are any other meds that can help Dad. I will ring Marie Cutie later for advice on what to do next.

    It's utterly heart breaking to see my Dad deteriorate like this. He's not eating, not interested in talking, irritable, snappy and swears and shouts. He keeps saying he wants to die. My Mum possibly has dementia and sometimes I wonder if she gets the gravity of it all. I'm sorry for going on. Today already seems like a hard day. Xx

  • I imagine every day is a hard day for you at this time.  Don't suffer in silence - it is all wrong that this situation has landed on your shoulders alone - on top of the distress about your dad's decline and your mum's confusion.  You need to be getting regular help and advice. Annie

  • The doctor has prescribed OPIOID, levomepromazine, midazolam and hyoscine butylbromide. These are all for system management and I'm guessing part of the palliative care. A district nurse is coming in the morning, im presuming to administer them as some of them look like you have to inject them. 

    I had a bit of a breakdown today. I guess it was inevitable what with everything going on but I really don't feel I can cope. I have an overwhelming urge to run away which obviously I would never do as I wouldn't abandon my parents. I love my Dad so much and I miss him already. I miss our chats, our laughs, his love. He's just a shell now. Mum's mind deteriorated years ago so in some respects I've already lost her too. Sorry for going on, today has been a dark day. Xx

  • Hello BlairM; I am pleased the doctor has been out and that a nurse should be coming.  I am not surprised that you are feeling so rough.  As well as the difficult situation caring for your parents you are facing the loss of your beloved dad.  No matter how old you are it is frightening and heartbreaking to lose  a parent - you have never known life without your dad.    It is too much for one person; do you have any good friends or neighbours with whom you can talk at any time?  You know you are always welcome here but it might help to have someone close by to share your fears and feelings.  When the nurse comes you need to find out exactly how often he or she is coming to help with your dad.  Tell her/him that you are struggling big time and exactly what you think would help you.  It is one thing to know that your dad is coming towards the end of his life but to have to watch it and bear the pain is a lot to go through.    Do keep in touch and tell me/us what is happening - not nice to be isolated in this situation.  Annie

  • I am fortunate that I have an amazing boyfriend who does whatever he can to support me. 

    Thank you for your kind words Annie. I will let you know what happens xx