Caring/feeding my Dad with small cell lung cancer

I’m trying to find new things to feed my Dad, his throat area is narrowing with Cancer, and I’m having to purée his soup and give him soft puddings etc and would love your ideas on what to feed him, nothing too chewy or lumpy.  

My dads dying from Small cell lung cancer, it has metastasis to lymph nodes, sternum, osophegus, bowel, bladder, spine theres possibly a bit on the brain too but he wouldn’t get a scan, (stubborn to a fault) and now has nodules of cancer sprouting up under his skin, some of these lumps have joined together along his rib cage, they are extremely sensitive to touch, he shouts out in pain at the least touch. I’ve been rubbing E45 lotion into his skin to stop it from drying out and breaking open. He has carers in 2 times a day.. but won’t let them do anything.. he doesn’t know where they’ve been and doesn’t want any germs-infection spread from other clients. His words not mine. So this leaves me to do all the caring for him, which I do gladly but have my own health issues too. He was given 7-9 months this time last year and has done amazing to get this far. He’s falling a lot now, I’m really surprised he hasn’t broken anything but won’t accept that he’s best to get help, he can get quite cheeky to me, and quite cutting. He was in hospital twice with sepsis, after the 1st time social work organisered the carers to come in, and wanted someone to stay at night they did offer Marie Curie Nurse but my dad said there’s people out there worse than him and it was decided with the family and social work I’d come and stay, as I don’t work because of my own health issues.  I know his time is getting nearer as he’s not eating very much, he’s hardly drinking and his urine out put is a dribble once most days or on occasions twice a day. He still manages to get up to toilet but staggers  into walls doors etc. He won’t use a stick or zimmer in doors which gets frustrating for me, each time I hear him move I hurry to be near him just incase he has another fall. I’m only dozing at night because I can hear him groaning in pain in his sleep, I always offer him his pain relief, but he can be stubborn and not take it. Which is really frustrating for me. I don’t like seeing him in pain when I know his meds can come trim it to a certain extent.  I do have siblings but as usual everything is left to me. Don’t get me wrong I’d do all this again in a heart beat. It’s horrible watching someone who was once so strong and fiercely independent fade away he’s under 7 stone now from 17!! He’s not lost his sense of humour so I try and make light of a lot of things and it helps keep me sane too. 

  • Welcome to Cancer Chat Scotlandking.

    I'm sorry that your dad's cancer has spread and he's having difficulty eating at the moment. We have some information on our website which may help with this but hopefully some of our members who have had found themselves in similar situations will be along soon to share their thoughts and advice.

    You may find some handy tips from our throat cancer community so do be sure to have a look for some of those discussions using the 'search forum' option in the blue banner above.

    Our cancer nurses are just a phone call away as well if you'd like to have a quick chat with them about this. Their phone lines are open Monday - Friday (except bank holidays) between 9a.m - 5p.m on 0808 800 4040.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Oh my what a struggle you both having you really need to talk to your Dad about letting the carers do more or you will make yourself too sick to help him especially with the lack of sleep.  I was in your position 5 mths ago with my beloved husband my lovely GP came in and kindly explained to him how we were struggling and then I had carers to take care of washing,changing beds and pads as I had to insist he no longer try to make it to the bathroom after he fell and I couldn’t get him up.   Marie Curie nurses were wonderful they came at night so I could get some sleep.   Appeal to your Dad that you really can’t manage or ask a nurse or GP to speak to him as things are only going to get worse for both of you tell your family you need help.  Good luck. 

  • I’m so sorry you had to go through this with your beloved husband, it’s difficult enough going through it with parents without it being the one we love the most. I’ll certainly take on board your comments and get my dad at a ‘good moment’ for a chat 

  • It sounds like your doing so well with looking after your dad, I care for my mum too whose only 39. I think sometimes they like to be stubborn for the feeling of them still having control and it can be so hard for us bending over backwards to help and sometimes they don’t want to help themselves. My mum can’t taste anything because of chemo so it is sometimes hard for her to eat, I tried making her smoothies which gives her a big boost and is healthy and she can also taste it. Maybe give that a go, hope you find some more answers x

  • Many thanks for your Advice Steph, i never thought to look on the throat cancer side of things.. just me being dippy. I’ve taken a note of the phone number too. Many thanks 

  • Axx1 Gosh you must be so so young yourself!! You have certainly taken on a huge roll and I’m sure your Mum will be super proud of how caring her child has become. You mind and take time for your self too. 

    It is difficult when you do everything you can and sometimes everything isn’t enough, I’ve had moments when in private I just breakdown in tears then give my self a good  shake and say tears won’t help action does... 

    hes had another  fall, and thankfully he’s ok the GP came in and had tried to have a word with him about staying upstairs even getting a chair by his bed for times he’s up to sitting up. We now have to convince him it’s his idea.. that way he’ll accept it more. The GP is in amazed my Dads still here to be honest.  It is so difficult when they want to have independent but we know they aren’t capable of doing things.