Has my mum's cancer spread and are these signs of her dying?

My mum was diagnosed with stage 4 lung cancer last year, unfortunately she can’t have treatment due to the cancer already being aggressive and also because she has heart failure. For the last 3/4 months, mums weight loss is becoming more drastic and she’s sleeping regularly for short periods of time. She can fall asleep 3/4 times an hour for 10-15 mins at a time. The last couple of weeks she’s started shouting out random words whilst she’s asleep and also muttering a lot when not actually shouting out. She also seems to have short term memory loss and will use old day words when talking. She refers to money as shillings etc. I believe that it’s common for lung cancer to spread to the brain and I’m worried that this is the case. Mum is refusing to have any more hospital appointments as she says there’s no point to being prodded and poked when she’s going to die anyway. I was just wondering if there’s anything I could look out for to know whether the cancer has spread to the brain or not? Mum has been getting very snappy lately which is not her at all, she’s stopping friends from visiting her with stupid excuses which again isn’t her. Mum is saying things like, she can feel different parts of her dying but can’t go into detail with what she means, she just says she can’t explain it as it’s just a feeling that she has. Could she really be feeling parts of her dying, is this actually possible? 

I don’t really know what advice I’m asking for, I come across this site and wondered if anyone else knows someone with these symptoms and how they dealt with it. I’m an only child and so I have nobody else to ask if they’ve noticed the change in Mum so I’m not even sure if all this is just my mind playing tricks with me being so tired. I’m my mums only carer and she won’t have any professional carers come in to help so I don’t really know what to do or where to turn.

I’m  sorry if this message makes absolutely no sense but to be honest, my mind isn’t making much sense anymore. 

  • My feelings constantly change , i do cry but never in front of mum, i wait until i get home. We are very close always have been so im finding it really hard, i dont think about the end i literally take everyday as it comes or else i would be a mess. Mum started showing signs of losing her marbles bk in may , i was taking her to the doctors constantly and they were just saying she had depression, in july i ended up calling 999 as she was unwell and thats when we found out she had lung cancer that had spread to the brain, my whole world fell apart , my dad helps a lot with mum and i also have a sister who also does her bit. Do you have other siblings? 

  • That’s so good that you have some help. No I don’t have any siblings, I’m doing this one all on my own. The day mum was diagnosed I moved in with her as I swore she would never spend a night alone, she was so scared and vulnerable and I felt I couldn’t leave her. I think it’s auto pilot that’s getting me through this as the moment. My best friend is a counsellor and she says she’s scared for my future, she fears that the double set of grief will hit in one go. She says she doesn’t think it will be immediately after mum going but she seems to think that maybe a few months down the line something small will happen that will trigger the grief for both my parents. I can’t see that happening coz I don’t feel I have any emotions anymore apart from anger. I can’t seem to get upset or cry. Do you watch Emmerdale? I feel I know exactly what Paddy is going through when he says he doesn’t feel anything about the loss of his baby. Maybe it’s the mind that puts a block on things to help you get through, I don’t know. I’m so glad you have people that are supporting you and understanding what you’re facing, it must be a great help ️

  • It is a great help, i dont really watch emmerdale but i know the storyline you are on about. The hospice nurses connected to your gp surgery should be able to offer support, as little or as much as you need.its also good you have friends to talk to as you need that. I live literally 2 minutes away from my parents so i am very close by. It is so hard to go through this and even more so for you as it was your father first, life is so cruel sometimes. 

  • I’m at a different GP surgery than my mum so I’m not able to use my gp for that and as I’m not a patient at mums gp they won’t allow me to use that service. I will try and go through Marie Curie at some point soon. 

    It’s so good that you live so close to your parents, that must give them both a sense of security and reassurance.   ️

  • Your mums gp should have hospice support, thats for yourself as well , dont ever doubt you are doing a great job and you are a great support to your mum .

  • Thank you for your kind words. I’ve already asked about that help from my GP but they’ve said they can’t do it because of it being two different surgeries involved. They’ve said I can however have counselling and have put me on the waiting list, they’ve said it should be between 8-12 months before I will get an appointment

  • That is crazy , its best to talk with your mums gp , im thankfully with the same gp practice as my mum 

  • Sorry for the delay, mums had a bad couple days. 

    I have spoke to the receptionist at mums GP as none of the docs will talk to me coz I’m not a patient at that surgery. To be honest I’m fed up with it all, they all just want to keep passing the book and I’ve not got the time or energy to be bothered with it

  • Our gp practise gave me a form for my mum to sign to give permission for them to talk to me also, it might be worth asking for one of them. It sounds like you are having a rough time and they are not making it any easier for you, always here if you wanna chat

  • Wow your GP sounds great, I wish mine were so supportive. I will have another go at visiting both surgeries and see which one I can get the most help from, thanks for that info, I didn’t even know there was a form that could be filled in . I know you already have support but I’m always here if you need to talk to someone that’s not directly involved ️