Feeling lost

Hi, I’m new to all this and have never posted on a forum before so here goes: My partner of 13 years and daddy to my 4 you children (all under 10) has now been told that his cancer is terminal. He has been given 6 months to 1 year. He was diagnosed with bowel cancer in April 2018. Had an operation to remove left side of bowel and lymph nodes. Stage 3 cancer was diagnosed and also cancer in 10 out of the 15 lymph nodes removed were also cancerous. 3 months of iv chemo and chemo tablets and thought all was well. Scans and bloods were taken. Scan showed severe spread of cancer through the lymph nodes and is now around the bronchial tubes and cancer confirmed in the liver. Blood work has shown that his tumour markers had tripled in 2 weeks. Chemo starts again in a weeks time and he will be coming home with a pump fitted to his pic line and nurses will come out to treat at home. Feel so drained and at a complete loss. Trying to stay strong and positive for my partner and children and keep everything as “normal” as possible. Sorry to rant on. ️

  • Hi there ...

    This is the place to come to "get it all out"  as theres always someone here that will understand and you have so much to deal with .. day to day must feel overwhelming... and you must feel like your in a never ending nightmare ...

    Well my heart goes out to you ... and wish I had a magic won't on here ... the only thing I'd say .. is try to look at one problem at a time ... do that then move on to the next ... Marie Currie have a great home page ... for people with his diagnosis,  and I was surprised all they did ... give it a read ... you will need some brakes ... every time you have a bit of time for you ... weather it's just going to a friend's... or walk in the park... anything that gets you away for a short time, will help charge your batteries ... so use all the help you can find .. McMillan may be able to help you with practical and emotional help ...

    I so hope you have good family / friends to hold your hand .. even if it's taking the kids to school or picking them up .. have they got grandparents that can take them out from time to time ... 

    Well I'm sending you a big hug through ... hold on in there ... and know we can't take it away.. but we can listen, when you need a shoulder to lean on ... Chrissie

  • Hi!

    I'm new to all this too (cancer and forums) but m finding it really helpful.

    I'm so sorry to hear of your family's sitation and I wish I knew what to say to make you feel better...but I don't.

    I can only tell you what I tell myself and my family (My Dad has cancer too)....look at the wondergul things that have happened in his life so far (children, loving relationship/laughter etc) and focus on making thr most of every moment thats left. He's still here today and you all have each other in different ways. It's going to be tough and you won't be able to stay strong 100% of the time...but that's okay. Don't ever be sorry, you have no reason to be and talk. Talk/vent to friends, family/forums...it helps us carry on a little bit longer.

    Hope this helps even just a little...

    Xx

  • Hi chrissie, thank you for your kind words and quick response. I have my parents helping as much as they can but they both work full time in challenging jobs ( dad is a firefighter and mum works with children with autism) so don’t like to ask them too much for help or burden them more with my emotions and worries. (Even though they are more than happy to do anything to help) I’m very stubborn and try to do everything on my own but think it may have come to that point where I need to start asking for help and advice hence my post on here . My partner wants to get married as his final wish. We have been together 13 years and I have somehow managed to pull it together but only have 3 weeks to sort everything. more pressure but wanted this to be a happy time for him and great memories for our children to cherish before their dad get too poorly. Thanks again for listening and for the advice.

    kind regards 

  • Hi, n2k-Nancy, 

    sorry to hear your having a rough time of it too.xx  Have found that just venting on here and reading people’s kind comments this morning has made a bad situation that bit easier. We try to look for the positives everyday and having four young children defo helps you carry on and try to keep things as “normal” for their sake. Just think I’ve got to that point where I’ve stayed strong a bit too long and now need to vent a bit. Thanks for all the advice. Keep strong.

  • Hi there ...

    A wedding sounds amazing ... and those photo as will last a lifetime, like every minute will be a picture the heart takes ... I'm so glad you found this little chat room ... you can say all that's in your heart, and we'll understand ... cancer is like a rollercoaster for everyone involved ... so hold on tight , it's a bumpy ride ... but if you look round , there's loads of us on that same ride...  

    Any time you want a chat, I'm on here most days ... l can't make it all disappear ... but I can hold your hand through those times ... my niece lost her sole mate when he was about 28 ... he went suddenly, even though he was fit, never smoked ... he was a dad to two , one 3 and one only 10 months .. and he was a great step dad to her 3 by her ex hubby ... they were 12 / 9 / 7 ....

    So I know just how much it effects the whole family ... his two little ones are now grown, the lad is just like his dad .. and the girl, has just gone through university... I'm sure he's looking over them, and proud as punch ... we always talk about him ...

    So please promis, to reach out when you feel overwhelmed... as a mum to grown lads, I would want to help... and I'm sure your mum is the same ... that's what us mum's do ... and always here for you too .. for the ups and downs ... hold on and know, any feelings you have are normal ... wer just human ... sending you all another big hug ...  Chrissie

  • Hi, I’m so sorry for the late reply. Have only just been able to afford another phone as my other one was taking from the side of my husbands (can say that now ) hospital bed....... could not believe it but apparently this happens quite often according to the staff. Thank you so much for kind words. Means so much to know that I’m not alone in this nitemare that is now our lives. Makes it that bit more manageable. So sorry to hear of yours and your nieces loss. Must have been such a shock. Life is so cruel at times. We are just taking each day as it comes now. Embracing the good and coping with the bad. Thank you again.xx