Rate of deterioration

Hi all, my mam was diagnosed with metastatic lung cancer (it has extensively spread to her brain) two weeks ago. Weve been told she probably only has another month or so, maybe less. It was completely out of the blue, still can't believe it really. Before she went to hospital she was sleeping almost all day and hadnt eaten for weeks (docs though she had an infection as had recently had her appendix removed...it's been one thing after another). Anyway she's been on dexamethasone steroids for two weeks and after two days...wow, what a difference. They started her on 8mg (all tablets taken in the morning) for 10 days and she was able to walk again and was not muddled up and eating again, was brilliant. Then reduced it to 6mg and she instantly (after a day) went downhill, could still walk, but was muddled up and forgetful and started saying things tasted funny. So the docs have agreed to put steroids back to 8mg now. Shes now been pretty good for the last few days,which brings us to now. Today she was slightly muddled, nothing too bad. Anyway I am wondering about your experiences, does dexamthasone hide cancer deterioration. Should I still expect her to eventually go really sleepy and go off her food, because at the moment she doesn't really sleep (not even fully through the night) and is eating loads. I am scared if I dont see deterioration symptoms she may just die really quickly, all of a sudden. Please let me know if you have any experience or advice. Thank you.

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    Hi There,

    I am so very sorry to hear about your mam's recent diagnosis. Twenty-one years ago my mum died with secondary breast cancer, which had spread to her brain, bones, liver and lungs - it was a harrowing time.

    Steroids can make a huge difference to a patient, as they did with your mam, but people don't always fare so well when they are withdrawn or reduced in strength. Do you have support from relatives or friends? I am not a doctor and can only speak from my own experience.

    Your mam may well get tireder, until she is sleeping most of the time. As the body shuts down it is unable to process food and drink in the normal way and she may stop eating or reduce the amount she eats and drinks. Everybody reacts differently to this disease and there is no telling exactly how we are going to end our days. Your mam's care team are the best people to tell you what to expect, as they have examined her, have her medical history to hand and know all about her cancer.

    I hope that they can help you.

    Please keep in touch. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Please do keep in touch as I am in the exact same position as you. My Mum is undergoing whole brain radiation this week and is currently on 8mg steroids which are making her eat loads. Thus she is constantly bloated and can't go to the toilet. And therefore cannot breathe comfortably.

    X

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    Hi Jodes,

    Your mum can get a prescription for something to help her go to the toilet.. Have a word with her care team or her GP. She would feel a lot better without this added complication.

    Kind regards,


    Jolamine xx