Problems with future palliative care

My partner has been given a few weeks to live. He is in pain and obviously frightened but in denial about the prognosis. Pain control has been difficult but after a second spell in hospital this seems to be under control for a while although we know it will get worse again. I am very much alone and the day to day care is becoming too much for me both physically and mentally. As we live in a country area medical back up at home is difficult. The palliative care team have suggested a nursing home and although he initially agreed he is now refusing but says one thing to me and a different thing to them. I am at my wits end as I am not in great health myself at present. I have family but they live long distances away and everyone also has their own lives and commitments.

  • Hello Alys

    I can relate to how hard it is my late hubby never wanted to know prognosis.

    A very few days from his passing he fell & broke his hip was taken to hospital to be honest I was totaly worn out.

    I also have health problems transporting him for pain relief to hospital was hard as he would not let anyone else take him.

    I have been confirmed I have bladder cancer after seeing what my hubby went through I refused treatment,have been refered to McMillion nurse but never seen her only the one phone call from her to confirm she is my palliative carer.

    Not much help but do try & keep your chin up

    Hug from me x