Hi
my husband was diagnosed with aggressive stage 3 prostate cancer almost 5 years ago.he was a strong fit man at the time. His PSA was 17. He began hormone treatment straight away and then had 37 sessions of radiotherapy. Initially it was good news and at the next 3 consultations his PSA had dropped to 0.2 and 0.01 respectively. We were delighted obviously. Unfortunately, the next consultation it had begun to rise and continued to do so. He was then given bicalutamide which had no effect whatsoever. We found it had spread to
lph nodes near aorta. He was then given enzalutamide which, like the radiotherapy worked initially but stopped working after 6 months. We then found out it had spread to his right hip and a little in his spine. As his right hip was the major concern he was given Radium 223, which is a monthly injection specifically targeting the bone. He had 4 injections and horrendous side effects and was suffering chronic back pain. He was on lots of pain relief and still is which isn’t helping enough. He had a scan recently and it was found to have spread to lymph nodes in his back and was progressing through his body particularly his bones,especially the spine. He had a nodule in his back which his 5cm which is very large apparently. He his due to have chemo in a couple of weeks time but he is suffering so much st the minute with the pain that he isn’t sure about having chemo as he had lost 2 and half stone since March this year and is very weak. His main concern is whether he will be able to cope with the side effects. He has little or no quality of life currently and he is unrecognizable as the msn he was 5 years ago. I am off work looking after him as he is unable to do much at all, especially with all the medication he is taking and it gets more and more difficult to watch the man i love deteriorate before my eyes. I am exhausted and stressed beyond belief and trying to put a brave face on and trying to convince him and myself that the chemo could be his savior. I don’t know what im expecting from putting this post on but I would welcome any thoughts you may have if you read it. I feel so alone and helpless. Thanks
