Christmas

As I am sure for many, Christmas is a very important and special time for our family. My children are in their mid twenties and no longer live at home, one being married and with a new baby born in August, our first grandchild. In March of this year my husband was diagnosed with cholangiocarinoma which is inoperable and the prognosis is a year or two. He is undergoing chemotherapy and is tolerating this well. The reason for my post is to ask people's advise about Christmas. Both of my daughters and their partners as well as our grandchild (of course) want to come for Christmas. I'd love them to come but don't know how well my husband will be, he wants them to come too but doesn't want it to become "our last Christmas together " type of thing, if you know what I mean. Also, what about presants? He doesn't want people giving him things to use next summer as it scares him that he might not be here, I don't want that sort of thing either, for the similar reasons. Any advise gladly received.

  • Hi there,

     

    Your post struck a chord with me and whilst I may not be able to offer you the best advice, I can offer you my own experience. When my own mum was Ill we sadly didn't get a Christmas with her before she was gone. However, when my mother-in-law was Ill we did have more than one despite a much poorer prognosis. For us it really was a family time which we enjoyed very much! We decided not to ignore the fact that she was poorly and I had a memory quilt made for her, full of pictures of her with family members and especially my children (her only grandchildren). She absolutely loved it and we told her it was so that we would all be surrounding her when she has a day that isn't so good. We also embraced the good days and made some very special memories full of laughter and joy. Just spending time together and sharing stories was such a special time. She embraced her old dancing days and showed off her moves in the kitchen, played board games, watched movies together and shared lots of life stories. What I think I'm trying to say is that there are good and bad days. The bad ones we took care of her and showed her love, the good ones we made new memories. We lived far away and regardless of how many bad days there were during our visits, we always made sure the good days were special. As far as gifts go, other than the quilt, we decided to buy experience gifts which could be used on her good days (like a cooking class or an open ticket for a spa day etc). She had everything she needed and didn't want gifts which may be wasted. We always planned the next visit when we were there and never cancelled any plans until the last minute if she really couldn't manage the visitors. That way, it was never our last anything, regardless of time of year. She always said that she loved having our visits to look forward to.

    It really is a personal journey for all and I do hope that you can enjoy some family time together, regardless of whether or not it's Christmas. Best wishes to you and your family xxx

  • Hello

    As you say Christmas can be a difficult time in this situation.  From my own point of view Christmas 2016 was so bitter sweet, we were lucky to share it with my son even though we all knew we reaching the end of his cancer journey.  As a family we are very open and even though I knew he was unlikely to be able to use his gift of a tank driving experience I still bought if for him. My daughters gave him similar presents gliding day etc.  By christmas he could not tolerate eating anything with fat in it, so we all had an alternative totally fat free christmas.  His birthday 9th Jan 2017 I bought him a John Deere boiler suit and cap to match the tractor he had purchased a few weeks before, he died on 19th jan 2017 aged 35 years and 10 days.  We all knew as did he that he would not be able to "use his presents" but it was the best normality that we could achieve.  Each family has to deal with this situation in a way that  suits them, and at the end of the day it is the memory and the photos that become so so precious.  I wish you all the best and hope that you have the best of times when the festive seasons approaches, but as I know realised today is the reality, and each one is to be treasured as it is the now, not the past, not the potential future , it is NOW. 

    love lesliexx