Looking after my mum she has stage 4 renal cancer , she’s been on the syringe driver around five days and still have to call on palliative care team at night for extra injections I feel so helpless and alone
This is a sad scary time .. and you've come to the right place ... your not alone now ... there's so many on here just helping each other through .. through good or bad ... you can say anything and someone will know how you feel ... this is probably one of the hardest things you'll have in your life ...
So hold on in there ..McMillan may be able to offer you some help .. and I know Marry Currie offer night respite .. reach out , call them, their numbers on their home page .. put it into your search engine ... and get all the help you can .. sending you a big hug ... Chrissie x
Hello Lee. Yes it is a very sad time for you and you have my sympathy. I cared for my late husband on his 6 month journey with lung cancer. I won't ever forget the long nights and having to ring for the nurses sometimes having to wait over an hour and feeling so helpless when he was shouting with pain. Three days before he died which was a Saturday I asked if I could have somebody to stay overnight but as it was the weekend nothing could be arranged until Monday. So finally it was arranged for a hospice sitter to come at 10 pm that night. Unfortunately my husband ended his journey at 9.30.
We see so much publicity about "cancer care and you are never alone" but the reality is nothing like that at all. I do think that if my husband had been in either hospital or hospice things might have been better controlled.
Please ask your mum's care team if they can arrange for night sitters to give you some respite and charge your batteries up a bit. It is an awful situation just trying to make your loved one's last days as comfortable as possible until they finally find peace.
Hang in there and keep posting, there are so many caring people on here.
Thank you for replying , they have offered overnight care ,but I know how private my mum is and she wouldn’t want them here so I have to honour that xx
I know well how that feels .. my sister is late stage dementure ... and she wants only mum and dad ... esp mum ... all I can say is they will be there to meet them... that's my hope anyways ..
