Fear for a new loved one

I am awake this morning because a beautiful woman I have just recently fallen in love with a woman that goes in today to have a port placed in her stomach for chemo that begins tomorrow. It's been three weeks since the oncologist removed a football sized tumor, ovaries, uterus, tubes, cervix, lymph nodes, appendix, omentum. 

The oncologist said biopsies revealed that they got all of the cancer, that it had not moved outside the tumor. But, they found two types of cancer in the tumor and that if not treated now (with three  differently chemotherapy drugs), the Dr says she only has a 45% chance 'to make it five years' but with the treatment (4 1/2 months), she has a 95% chance to have a future. 

I am scared this morning. I woke with a knot in my stomach. I don't know anything about  supporting someone through cancer except what I've read about what she will experience over the next ~18 weeks. My terminology is certainly flawed.

Actually, I'm terrified and tearing up trying to express my emotions. 

Maybe what I want to hear is just the voice of experience in this kinda thing. Her family, with the exception of three of her children, seem to absolutely not understand her emotions/crying, fear. They say the most asinine things to her, play down her fear and sadness, even belittle her.

Today she gets port and tomorrow she starts the chemotherapy. 

Please help me to understand how to love her through this. How to reassure her. What NOT to say and what TO say, and when to say nothing. What can I DO?

And me? I fear how I will react. Will I be strong enough?

I know one thing. She will be beautiful to me no matter what happens to her body, because she will be alive. I love her so. 

  • Hi, I'm really sorry to hear about your loved one's diagnosis. It seems to me you are both very brave. What you are facing sounds so scary. But cancer medicine is very advanced these days and there are a lot of success stories. My mother was told by her medical team that she had a 10 percent chance of surviving five years. That was in 2008. She beat the odds on that one (although she passed away last month). 

    It's hard for me to speculate on why my mother was able to survive cancer. Definitely her excellent doctors played a large role. But there are also a lot of subjective factors that I firmly believe helped a huge amount. One of those things was hope in the future and belief in her own ability to help combat cancer. So I am very moved when you write about your determination to help your partner. That alone has a value that is priceless.

    Looking back, I suppose my family may have reacted in a somewhat similar way to what you describe. Don't mistake me: Every member of my family loved and adored my mother but we had different ways of expressing that love and we also had different problems in handling our own fears and panic when we heard the news of the diagnosis. For example, my brother's coping mechanism was to withdraw himself and my sister's reaction was to get involved in every aspect of my mother's life, to the point where my parents both felt she was a "benevolent dictator". I also was problematic, I am sure, but I am still so close to the emotions that I cannot tell you what I did that was probably not exactly productive. Point is, most people don't know how to react to such news. It might be that when your loved one's children downplay her emotions, they are not necessarily saying "It's not so bad/serious" so much as trying to express a sense of optimism and love for their mother. They might be trying to make her feel that everything is "normal". I feel very sympathetic when you write that the children are saying asinine things; this was my brother's strategy and it drove me to despair and actually to the point where I thought I might never speak to him again (we do talk now and relate much better than before but that is another story).

    Macmillan Cancer Support has a free booklet called Looking After Someone with Cancer. I got a copy at my local library but they also have a free phone 0800 808 00 00 (Mon. to Fri. from 9 am to 8 pm) "for cancer support every step of the way".

    I hope this perspective is a little helpful. You raised so many points and I could only speak to a few and from my own experience. I very much admire the obvious love and care you show. It's normal to feel overwhelmed by everything, especially the medical terminology, which just adds to the stress.

    Don't be afraid to ask questions and to seek clarification of terms. I found it helped to take a pen and piece of paper to make notes during the doctor's appointments. Don't be afraid to ask your loved one what she wants. Don't be afraid to ask her about what she is feeling and don't be hurt if she cannot talk about it at that moment.

    In admiration of your courage and with all respect,

    Sabine

  • Sabine, I am so thankful for your reply. The thought and time you put into this is deeply appreciated. 

    I will take it all to heart. I myself, am being pushed away at the moment, she says she's humiliated by her condition after the hysterectomy and leading up to chemotherapy Thursday. I am being patient. 

    Again, thank you. Stan