Hello,

My Nan (82) has been diagnosed with TCC as they have found a tumour in her ureter. It was unexpected and very sudden. She has been diagnosed with Alzhiemer's for many years which has really deteriorated since the new diagnosis. 

It's been a hectic ride of tests, scans and appointments but she had her first attempt at a biopsy and laser last week. Unfortunately it failed and the tube was perforated. No biopsy or laser was able to happen. They're hoping to re-try in 6 weeks but the only treatment option we have been offered is to repeat the same operation every 3 months after the next one, in hope to try and stop it spreading. 

We are struggling with 1) not having a grade of the cancer and everything being so unknown  2) the toll that this operation has had on her, she has physically and mentally significantly declined (had a catheter since the op now) 3) with no prognosis (although the surgeon said 18 months if successful with the 3 month ops, if not 'a lot lot less?' 

And that's only the half of it! 

With it being such a rare cancer I would appreciate ANY advice, support, experience etc from anyone. 

Thank you so much