My father has brain mets after 1.5 year of fighting

Hi everyone,

I just found this forum and have been very touched by the sense of community here so I thought I'd share my struggles here. 

I'm in my early twenties and my dad was dx with advanced lung cancer a year and a half ago. After trying every drug, he was finally put on Keytruda, which has been doing really good things for him. But we just found out he has 2 brain metastasis last week and he will now be getting stereosurgery. The doctors said his prognosis is very poor.

Even though I've been with him for the past year and a half, I was still in shock with this news. The reality of losing him once again strikes hard. And I feel unsupported by my close friends. They say things like "Be strong," or "Just try to spend as much time with your dad as you can." I don't blame them for not understanding but I don't know what to do.

I want to be a good friend to them but I can't when I can't feel like they understand (or make an effort to) what I'm going through. Also these past 2 weeks have been very stressful for me. I cried almost every night and I'm worried that I'm not coping well.

  • Hello bvan95.  So sorry about your dad's mets.  This must be a shock to your system having believed your dad was doing so well.  If your friends have not been in your situation there is no way they could really understand it.  Have you tried telling them how it has affected you and what you would like from them at this time?  Or maybe you are not sure yourself - it knocks you for six to learn that you are possibly going to lose a loved one.  Go easy on yourself.  Are you able to talk to your dad about his prognosis and how he wants you to help him?  And have you got other family members who are helping in this situation?  Sorry to ask questions but you sound as though you are quite isolated with your worries.

    I am attaching some advice for family of cancer patients and hope it may be of use to you.  It includes other organisations with who you can make contact - Macmillan Cancer Support are one well-known organisation to whom you can always talk (Freefone 0808 808 0000 Mon-Fri 9am-8pm).  And of course if you would like to tell us about your fears we too are always happy to chat with you.  Best wishes.  Annie

  • Thank you for your reply! 

    My situation is a little bit strange. I'm a recent college grad who moved back to Vietnam from the US. Since I haven't been back for so long, I don't have a lot of close friends here and the one close friend *here* whom I shared with just didn't quite know what to do. The couple of friends whom I have been able to talk to are in the US :( 

    About my family, I've been taking my dad to his appointments and I'm actually volunteering at the department he's getting treatment at so I've chances to talk to his oncologists. My dad doesn't quite share his struggles with me but I think he knows about his prognosis. My mother has been great with making sure we have the financial resources to deal with it but I can't open up to her. She thinks that my dad is dying because he is not praying to gods and ask for forgiveness. My older sister lives with her family in the US and we also don't talk about it.

     

  • Hello.

    Your are very young to have to go through this bless you.

    Sadly unless others have been through this then people Don t know how to deal or know what to say. However you kind of find out who your real friends are in these awful situations. 

    Keep popping on here for support. And a rant if you need some support. People are very kind .

  • Hello again bvan95; sorry for late response, have had to be away for a few days.  How are things going?   I am just trying to get the picture - have your parents also returned to Vietnam from the US?  Sorry to be inquisitive - and you of course don't have to tell me your family business!  Why does your older sister not want to talk about it - you don't have to tell me actually but it is a bit odd if he is her father too?  And how is your dad coping - is he talking to you a bit more?  I understand you have to let him decide how much he wants to discuss - it can take a while to come to terms with this prognosis.  How are you feeling yourself? 

    I hope you don't mind my curiosity - I am naturally a nosey person and I know very little about Vietnam (apart from the war which I am old enough to remember).  What are the medical services like overall?  I realise that sounds very rude to suggest that they are anything less than first class but I, well I just don't know unless I ask.  Best wishes.  Annie