My mum was diagnosed with stage 4 brain tumour a few months ago. She was offered only palliative chemo therapy, prior to this she had been working, looking after grandkids living a normal life. The last few months she has been in a local community hospital. Everyone else comes and goes and she was still there, as a family not going through this before we have no idea what to do! I was so disappointed at the lack of support, or someone to guide what to do. 

To start my mum was going home but there were no carers available for home care, she is wheelchair bound and would need 24hr care. 

So now the only option is a nursing home but even that is a struggle trying get somewhere. I don’t want my mum to spend the last of her life in that hospital. Has anyone been through this? 

I am just so angry and disappointed in the care and support or the lack of. It’s like she has just been left there to die! 

I have tried phoning care manager which isn’t much use.

I had a place at a nursing home then they backed out saying they weren’t sure about giving Mum her chemo tablets and there was flu at the home! 

Just don’t know what to do 

thanks