Cancer Research UK main site

Follicular non-Hodgkins lymphoma

Candy132
Offline

Hi,

I'm new to this forum.. and I don't normally do chats online but needed an outlet. My husband has the above disease and this is the second time after 6 months in remission. Hence, he is goinf through a different chemo drug and is reacting badly to it, whereas last year he was fine physically with his treatment.

I feel exhausted from worry and lack of rest from all this. I feel I've tried my best to do everything and being understanding about it all, but sometimes it's just so hard...

  • Hello Candy132 and welcome to our forum.

    I'm sorry to hear about your husband, this surely must be a difficult time for you both but I'm glad you found us as it does help to chat with others who can relate.

    Hopefully, some of our members will be along shortly to chat with you and offer advice. You can also try to search for posts from people who have similar experiences. To do that just insert the term 'follicular non Hodgkin lymphoma' on search engine from the left hand side of the blue banner at the top of this page and click enter.

    I hope you will find our forum helpful, Candy132, and please remember that there is always someone here to listen if you need a chat.

    Warm wishes to you and your husband,

    Renata, Cancer Chat Moderator

     

     

  • Offline

    Hello Candy132, welcome to Cancer chat. I am so sorry to hear that your husband has FNHL. I was diagnosed with this 11 years ago and have been on treatment 3 times during those years. My husband is my rock and I sometimes think it is harder for him than it is for me when i am on treatment. Hopefully this second lot of treatment will give your husband a good remission. 

    If you would like to do so please come back and chat.

    Thinking of you both,

    Christine.

  • Offline in reply to Wolfhound
    Hi Christine, Thank you for your kind and inspiring words. It helps me a lot to know that I am not alone in this. It's just I feel that though my friends and family are supportive as they can be, but until you experience your loved one going through it, they don't really understand. I feel so worried as he was at maintenance level since last February (rituximab injections every 2 months), and now it has come back again. He is now on lenalidomide oral tablets and R-Chop and he's suffering from its side effects. Anyway, thank you again for your reply above, and it's promising and hopeful to know that this happened to you 11 years ago, which shows that this disease can be beaten or arrested at least to carry on with life. Candy132 xx
  • Offline in reply to Candy132

    Hi Candy132,

    It's nice to know that my words were some help. I know nothing of lenalidomide, but I found R-Chop very tough compared with R-Cvp, the sickness was very bad. Sandy always says he feels dreadful having to take me to have something that makes me so ill, but he knows it has to be done. I have just finnished 12 sections of radio therapy which was a round trip of 120 miles each day, I don't know who was most tired!

    Just remember that life can be good during remissions and eventually life does become not all about lymphoma again.

    Hopefully 2018 will be a good year for both you and your husband and me and mine.

    Christine xx

  • Offline in reply to Wolfhound
    Christine, I'm sorry that it was a bad process for you and Sandy having to drive 120 miles every day. I hope that you are now in remission? And now living a life as best as can be. I don't know about R-cvp, I must look that up as at the moment hubby is only doing R-chop. Happy New Year to you and hubby and let's pray and hope that 2018 will bring us all health and happiness. Candy132 xxx

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.