Hi
I'm 25 years old. I had been coping well as they said the proteins had decreased and she had been responding well to treatment (been having treatment since mid august) This week we found out they had gone back up and her pain had come back so they've swapped to radiotherapy, she was going to go for a stem cell transplant but not whilst the protein is high again.
I see the effect this has had my mum, she is less positive and makes remarks as oh better do this now as might not be here soon. And whilst perhaps normalising this subject I find it upsetting, clearly its not my feelings that are important here.
I just find it difficult to continue my day to day life as I don't know what to do or what to say, I want to try and influence her to be positive but I'm just not coping with the unknown myself at the minute.