Facing a future without my husband.

Hi everyone

I'm posting for the 1st time to see if anyone is out there in my position. My 32 year old husband has been diagnosed with terminal neuroendicrene cancer. We are childhood sweethearts and have two young children together. 

His diagnosis came as a shock after going back and forth to the GP and then A&E as a last resort. His symptoms were very similar to IBS. 

Once we were told the type of cancer his chemo started 2 days later and he is due to have 6 lots every 3 weeks. He is just approaching his 3rd lot next week. 

I feel like everything has happened so fast and it's strange because once the 1st week after chemo has past my husband looks well and is feeling good. I look at him and cannot comprehend what is going on. 

I have spent half of my life with this wonderful husband and Daddy. I am beyond devastated and just looking at my 5 and 2 year old children breaks my heart. 

Any advice for how to live some kind of normality when life is anything but? 

  • Hi there ... my heart goes out to you ... I would love to have some words that would help , but I know having 2 babies so young , you must feel overwhelmed  ... the only thing I can offer, is live in the day .. fill the time making memories .. maybe you could do a memorie book together for the children ... lots of photos... I've done a memory book for my little Emily  (in photo) coz she's my best buddy and in the time I have, I'm filling every day with her... we laugh all the time, and that's what I want her to remember me doing ... 

    So take that time your given, be it long or short and pack a lifetime of memories in it ... if you can just stay in the day somehow you will get through ... when things get too much you can call the nurses on here, or mcmillan have a free phone number ... you can talk to them ... 

    Cancer takes away everything it can ... it wants to see us beaten and tries to make us give up ... it has no compassion.. but I think every time we make good memories and everytime we say it may take us in the end but we'll fight it every step of the way, it's like kicking cancers *** down the road ... don't let it take one more day then it has too ... 

    Please stay in touch .. weather your having a good day or just need to have a good old rant ... your not on your own... we will hold your hand whenever you need it ... so sending you a huge grate caring hug ... be kind to your heart ... hold on in there ... you can both walk this journey together ... fingers crossed you've got a lot more days yet ... chrisie xx

  • Hello

    im in the same boat Hun. We’ve two boys aged 10 & 8. If u need to chat message xx