Primary small intestinal now peritoneal

I’m in Australia with a very ill husband only 53 years of age. Diagnosed in December 2016 after surgery with small intestinal cancer with peritoneal metasteses. 3to 4 months prior miss diagnosis with severe abdominal pain.

after surgery was told to go on palliative chemo and survival time of 1 to 2 years . Devastating. My daughter a medical student sourced a surgeon in Sydney that specialised in peritoneal surgery. So dr recommended 6 months of full on chemo to minimise cancer ready for peritonectomy surgery. Chemo went well considering such high dose. Went in for major surgery with dr, but he aborted as too much cancer layering around intestinal area. 

Very disapointed as was our only big chance a beating this demon. 

So now back on chemo, but the surgery has taken its toll. Two bowel obstructions since and finding it hard to balance low fibre diet to prevent further obstructions and keeping nutrition up to balance the bang if chemo. 

He us Hospital as I speak, fighting aggressive weight lose lose of appetite and chronic diarrhoea. Will we get our life back?? He is a fighter but this is so hard. This is do unfair. Has anyone else andured this path?

plus I’m so frightened of time lines with this cancer... months?? Too afraid to ask oncologist, but I sort of need to know. 

We had travel planned and he wants to see his daughter graduate as a doctor in October 2018 , is that too much to ask . 

I know this is a UK forum but Aussie one too hard to get in to . Thanks to any replys x

  • Hi nang ... just wanted to welcome you to our little chat room ... yes there are so many of us, walking this journey we all find our self's on .. we can't make things better, but we can hold each others hand along the way ... so from our little country to yours , we send you a big caring hug .. hold on and try to do small steps ... don't look to far ahead ... I didn't think I'd see this Christmas but here I am still walking this path ..so after Christmas I'll look a couple of months ahead and so on .... so take care of your heart and be kind to your self ... chrisie xx