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Secondary breast cancer, bones and now peritoneum

Cattc76
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Hi, 

On Monday we were told that since my mum's CT scan in August a new scan two weeks ago showed its now advanced and in peritoneum... 

I am devastated and I don't know what this is actually means.  Obviously I know that time may be short? They have prescribed new drugs and arranging palliative care. How do I get help and support??

Thanks 

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    Hello and welcome to Cancer Chat, Cattc76.

    I'm very sorry to hear about your mum's secondary breast cancer diagnosis. You're bound to have lots of questions so I thought I'd stop by to mention our cancer nurse helpline. They're here to listen, and to provide information and support. You can reach them on 0808 800 4040, or email them if you prefer.

    I'm sure someone from the forum will be along soon to share their experiences but I just wanted to pass those details on straight away in case they're of help.

    With best wishes,

    Helen
    Cancer Chat moderator 

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    Hello Cattc76 I also have secondary breast cancer in my bones and it was (is?) in my peritoneum. The secondary cancer was diagnosed in 2015, 20 years after my initial breast cancer diagnosis in 1995. It was found because it blocked my bowel and I now have an ileostomy. I have never seen anything else about people having ileostomies for this reason. I had not had any problems since my lumpectomy in 1995 so it was a huge shock. Later it was seen that I have multiple bony metastases but I was told that these had been present before my diagnosis. The bony ones haven't altered in two and threequarter years. CT scans don't seem to show the ones in the peritoneum so I don't know whether the chemotherapy got rid of them or not. I don't know what type of primary I had, only that it was Stage I and I wasn't considered to be at risk. (I didn't have any lymph nodes removed although I had radiotherapy, tablet chemotherapy - "mild" and then tamoxifen for 5 years.) Things have probably changed since 1995. I am sorry about your mum. I can't really offer any advice as there doesn't seem to by much written about peritoneal metastases and everyone is different. Perhaps the Macmillan nurses can help? I wish your mum and you well. Windflower
  • Offline in reply to Windflower

    Hi I was diagnosed with Mets in peritoneal cavity and bowel in Feb 2019 underwent an ileostomy with 40cm of bowel and 3 tumoirs removed. Still a few tumours left behind. I had 2 cycles of Taxol but scan in May revealed progression - growth of existing lesions and spread into liver. Now on Eribulin. I've just completed 2 cycles so due a scan to monitor it.

    September 2014 primary BC, 8cm & 2cm, 26 lymph nodes, mastectomy 

    Octobet-April 2015 chemo 3 x FEC plus 11 x weekly taxol

    July 2015 21 x rads

    December 2017 bone Mets

    February 2019 bowel obstruction, peritoneal mets, ileostomy 

    Match-May  taxol

    May liver mets, switch to Eribulin 

    June - awaiting scan

     

    It's pretty rare, and poor prognosis. Anyone else out there with the same? Are [@Windflower]‍  or [@Cattc76]‍  around??

  • Offline in reply to Riversidedawn

    Dear Riversidedawn

     

    i have just seen your post and sadly I have as of yesterday learned I have the same progression. It would be great to hear and speak with someone in the same position so I can understand what the next few months will bring. 
     

    All the best 

     

    KAR32

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