Feeling guilty.

This is a long one, so apologies for that.

My little sister (technically half sister) has recently been diagnosed with acute myeloid leukemia. She's turned one pretty recently so it all still feels really unfair for such a tiny baby to be so sick, & I tend to feel pretty angry at the world about it (which does no good whatsoever but I can't seem to change that.), because she's a loving and joyful baby who has no business suffering like she is. She has Downs syndrome so her prognosis is pretty good, as far as we know. She's having chemo at the moment and will be in hospital for the next six months at least. 

Due to the downs syndrome she's been very sick since birth and as the oldest child in the house (my older brother, 21, lives pretty far away) at 17, it's my job to look after the younger two, keep the house clean and generally just keep the household going while my stepdad works and visits Freyja (my sister) and my mum visits her. It gets quite hard to manage around sixth form and work so I tend not to be able to make plans, getting in to sixth form is often a struggle too. 

I don't really have any friends, and none that I would be able to talk to things about, and whilst my girlfriend is wonderful, i'm far too embarassed to tell her about some of the things i'm feeling because I genuinely feel terrible about them. 

I guess feeling forgotten is usual for siblings of cancer patients, because of course i've had to step off the family's 'priority list' as such so freyja can be given the attention and care that she needs. It still stings a little to be honest. I recently had some offers for universities and unfortunately my mum wasn't really able to feel/act proud, which is fair and i do realise i'm being unreasonable by getting upset- Freyja needs her attention more than I do, and deserves it right now. What pushed me over the edge recently is that they've decided that the family will spend christmas in Addenbrookes, with Freyja. I have work, so I cant go. I actually found this out through my girlfriend because my family don't really talk to me about whats going on, and although I know it's selfish and petty,i'm just hurt that they decided on all this and don't mind leaving me alone on christmas day, and didn't think to tell me about it either. 

 

Like I say, I know it's terrible of me to wish I was higher up on the list of what mattered to them but I just can't seem to help it.

I know that they need support right now and I try to help as much as I can, to help out with money and running the house, and at 17 I really shouldn't be acting so childish over this, I just really can't shake the feeling that I don't matter that much anymore. 

All i can say is i'm really embarassed to be feeling the way I am. 

  • Hi there jazzy ... so sorry you are in this situation at your age ... my heart goes out to you.... in a perfect world, you should be just going out and having fun ... 

    But it’s such a shame these are the words you think about your self “unreasonable / selfish / petty / terrible / childish ....   now this is how I see you ... caring, brave, loyal, unselfish, strong and amazing ... 

    l can understand why your family are so wrapped up with your sister as that must be heartbreaking... it’s probably all they can think about right now ... but you love her very much and you understand why these things are happening... your very mature for your age ... but you know those feelings of wanting just to be noticed is really normal ... you would have to be super human not to feel like that ... I’m sure they realise just how much your helping by all your doing ... 

    pits a shame you can’t talk to your girlfriend... can you spend Christmas with her ... or her spend a part of it with you ... it’s a shame you can’t get Christmas Day off ... if you explained to your boss maybe he could let you off working ...

    if you can just hold on, hopefully this time next year they will all be home .. remember it’s just one Christmas...and if they all stayed home with you, it would mean your little sister would be on her own  and I’m sure you wouldn’t want that .... but please stop feeling so guilty... I’m so proud of you ... you have every right to feel sad and left out ... but it sounds like everyone is just trying to get through for your sister ... but do try and have a little chat to your mum and tell her you want to feel they can talk to you ... that you want to be included ... so hold on in there ... always someone here if you need to talk ... sending you a hug ... you take care ... Chrisie ️ Xx

  • Sorry for this late reply, it's been a busy weekend with work/babysitting/hospital visit etc. 

    I know they are very wrapped up with it all at the moment and it's true that they should be spending christmas with her. After all, it will only be her second christmas and i've had plenty so far so one christmas alone is a fair deal. Unfortunately my workplace is not very lenient so I won't be able to swap my shift at all. When it comes down to it it's not so much the fact that they are celebrating christmas without me, more so that they decided to do it without running it by me at all first. It's that I feel a little excluded from the decisions they make as a family, I suppose. Given the choice, I would rather they spend christmas with Freyja. 

    My girlfriend says she is going to try to visit me on christmas, if she can. Although i'm not sure she knows how upset/sulky I am likely to be on the day! 

    But I have mentioned that to my mum- that I would like them to keep me in the loop a little more. That was helpful advice on your part, I appreciate it. :) 

     

  • Hi there ... so glad you had a chat with your mum ... it’s talking and listening too and keep the communication open .. you sound very mature ... I remember spending one Xmas on my own after my divorce, didn’t want to put any one out as they had all made plans, and my old dog was poorly with cancer and only had a few days to live ... so I made my dinner for one and put the t.v on made a bed by the fire and spent the day watching people having a great time on the telly ... but it was just one day and I got through ... and looking back I wouldn’t have changed a thing as holding my wonderful dog was a lovely memory... he passed away 2 days later ... so I do know what it’s like and I hope your girlfriend will be with you for at least a part of it ... hope your sister is doing o.k ... thinking of you all Chrisie xx