Coping as a carer

My mum has stage 4 breast cancer with metastases in the bones, mainly the spine/pelvis, and liver. She is just over a year post diagnosis. She has just started a second treatment after the first stopped working. 

Today we found out she could have spinal cord compression and is undergoing an emergency MRI scan tomorrow to confirm. 

On top of this my parents have recently split due to my dad's affair and he is now living with his new partner. Its all very recent and I'm struggling to cope with that as well as be a carer for mum. 

I also have 2 young boys, a husband with fibromyalgia and a part time job. 

I am really struggling to cope with all of this. So many  people need me and I don't know how to split my time. I feel mum should be my priority but I can't abandon my other commitments. I also can't deal with my dad trying to be all happy families with us and his new partner, as well as feeling I'm walking a tightrope with regards to what I can tell him about my mum's condition as she wants very little to do with him. 

I am already on a high dose of anti anxiety medication  and I have signed up for counselling - but fitting that in with everything else will be a nightmare. 

I just don't know what to do or where to turn. I took nearly 6 months off work when mum was diagnosed so going on the sick again is not an option. Money is already tight and without my job we would probably lose everything. 

Please, any help or advice anyone can offer would be so much appreciated. I feel like I'm drowning and I don't know what to do. 

  • Oh dear ... just must be wondering what else can be thrown at you ... you talk about how to care bout every one but you , bless ya ... I remember a time when I was like you feeling pulled every way by everybody an just wanted one day for ME  .... but I just took one problem  (after priorities where done) at a time and some how got through it .. but first we have to realise were only human and there's only 24 hours in a day .. and we don't have a magic wand  

    So here I am grown old myself with grown boys with families of their own and you know what's weird... just sometimes I wish I was back there being needed again ... big hug and you will get through  ... your stronger then you know  .. braver then you imagine xx

  • Hi Punkflamingo,

    Wow, you have got a lot n your plate, your Dad's timing is pretty lousy too.

    Counselling might help, but what you really need is some practical help. Is there anyone you could ask to help out at home while you spend some time with your Mum? Maybe get your Dad to take the boys off your hands to give you a break?

    Your Mum may not want anything to do with your Dad, but hopefully you'll be able to make him aware that things have taken a turn for the worse and that you need to concentrate your efforts on your own family and helping get your Mum through this latest set back. 

    Chriss is right, you need to remember to look after yourself - you'll be no use to anyone if you collapse with exhaustion or completely lose the lot! The next few weeks will be difficult, all you can do is take it one day at a time and muddle through somehow. 

    Best wishes

    Dave

     

  • I couldn't have read anything that I empathise more with right now. Just want to offer a virtual hug & say I feel you. I'm not sure I have any practical advice myself (in fact I'm going to follow this thread and hopefully gain some advice myself) but one thing that people keep telling me is that you need to look after yourself before you can properly look after others. Which I agree with but it's hard to put into reality. 

    My mum keeps joking about me packing in my job and caring for her full time but it's just not practical but it does play on the heart strings!!!

    this is not an easy time and I think most carers seems to struggle with balancing everything & feeling that they are doing "ok". So maybe the first step is realising we aren't super women and we are going to have times where we take some time out to recharge the batteries and come back fighting. 

    It's my birthday today. I left the house at 6am to drive a four hour round trip to take my mum to her 5 hour chemo session. We then had a little argument because she often is in a bad mood on chemo day. Just got home. Back to work tomorrow. People who haven't been there can ever understand how hard it is. 

    Hang on in there. I'm sure you are doing amazingly xxx 

  • Thanks all for your replies. Mum's symptoms have improved and we're now waiting for the results of her scan - it doesn't look like it is compression now so we're hopeful the results will be positive.

    I do try to take time for me but I'm the only one without a major illness or caring needs so I see myself as low priority. I also have a bad habit of feeling it should be me who looks after everyone and I feel bad if I share the load - I'm trying to get over this as I know it's not helping anything.

    Mandy I just want to send a massive hug right back. I really empathise, my birthdays kind of disappear into everything else these days. If you want to chat feel free to send me a message, maybe we can help support each other.

    Thanks again everyone. I feel better just for offloading and will take on board all you have said xx