My depression is worse than my husband who has cancer

My husband (56) was diagnosed with stage 4 bowel cancer after an emergency operation to remove a blockage in May 2017. He is coping brilliantly with the mental aspect, as well as the stoma he was left with after the surgery. The cancer has spread into his lymphatic system and his chances of being cancer free after 5 years, even with intensive chemo are only 15%.

The first course of chemo, infusion and tablets, left him violently sick, dehydrated, malnourished and exhausted. He was hospitalised once for rehydration but refused to go back, despite his worsening condition. He has since been reprimanded by the oncology team and his stoma nurse. He would not llisten to me when I insisted he went back to hospital.

His second course of chemo is a reduced dose and he is tolerating this very well although he is exhausted by lack of sleep.

I am his sole carer and we have no living relatives or children. I am currently trying to renovate and sell my late parents unoccupied home which is many miles away. Every spare moment is, at his insistence, spent preparing this for sale.

Additionally a few years ago we started to work together in a small company (just the two of us and an overseas based owner), again located many miles from home (I have a two hour journey each way). This was the worst decision of my life. I have never liked the job, but we managed well between us, splitting the duties according to our individual strengths. 

I am now left to run the business on my own, much of which is well out of my comfort zone or beyond my abilities. I have little or no support from the owner, although he is still willing to pay us, despite erratic work patterns, and long term absence by my husband.

I can not sleep, I wake in the early hours and start to worry about the travel and the day ahead. My own home is neglected due to lack of time, and I have not sat down or watched any TV since May.

All I want to do is spend quality time with my husband, and financially we are in the lucky position to be able to manage - at least in the short term. The only good day during his first cycle was spent with his friends, whilst I cleaned my parents house. It was my birthday!

Any expression of distress, tiredness, sadness or frustration on my part is met by an argument. He takes it as a personal insult that I can't cope so I keep trying but have now reached breaking point. I only have a 'wobble' occassionally (4 times since his diagnosis).

Just writing this makes me feel like I have nothing to complain about, after all I am fit and well, but emotionally he is the strong one.

Does anyone have any advice as to how I can make him see the effect this is having on me (again I now feel selfish). Our friends all understand, but he just thinks I am weak.

Thank you.

  • Hello I feel for you I really do. I have no advice as I am in a similar position with losing my mum and me being her only living relative. The pressure is immense and you feel torn in several ways and so so tired..... We are human after all and we feel guilty but the coping has a physical and mental effect on us. Please keep talking and find a way to let go every now and then. You have a lot to cope with so factor in some YOU time ️
  • Hi there .. my other half lost his wife to breast cancer and he did everything for her and it took him years to come to terms with all he went through .. he talked it out with me when I met him some months after her passing .. it broke my heart knowing how hard it was being the main carer and how isolated he felt ... I just hope you find the strength to carry on and take things a day at a time and try to not get overwhelmed ... There are help groups you can join so you can open your heart to your feelings and know your not on your own ... So sending you big hug and thinking of you xx

  • Have your primary care physician or a friend recommend a good counsellor.  I'm going through a similar situation with my daughter.  She could care less.  I'm the basket case.  I finally reached out for help and have stopped crying myself to sleep at night and worrying about the future, over which I have no control.    Some time we just need someone with whom we can talk/unload and can give us the answer we need at the time.  I always felt I was a strong person and would NEVER need help from anyone.  This all changed a few months ago.  

    I can't even think how it must be to try to hold down a job.  Please ask for help, even if you just talk.  Help is available.

  • My husband is so positive he's annoying. I'm a nurse so always go for worst case scenario. I do not know how I can cope,any help out there!

  • Hi there ... it sounds like your two pieces of a jig saw, both different but fit perfectly ... if you were both too positive, it would be so hard if given a bad piece of news ... if both only saw the worse case sinario. . It'll be pretty much just crying ... so celebrate your different views and meet in the middle ..

    Chrissie xx

  • The answers seem obvious if you are not emotionally involved. Just be straight with him, tell him that you're not coping and that something has got to give or you'll have a nervous breakdown. You cannot carry on as you are, not without making yourself ill.

    Think about your priorities in life and then look at what's stopping you from doing them. No-one can possibly be a full time carer, a full time house restorer and do the work of two peole all at the same time. Choose which role is most important and find a way to let go of at least one of the others. Maybe consider selling your Mum's house exactly as it is. Someone, a builder or developer, will buy it if the price is right and that will be one worry out of the way and money in the bank.

    Finally ignore the 15% survival statistic - those figures are only averages and should never be applied to individual patients as there are so many varying factors that affect outcomes. I was quoted a 5% chance of surviving for 5 years when I was diagnosed in 2013. 

    Good luck

    Dave

  • Hi there. You have to stop doing something. You can't do all of this, obviously! It's taking too much out of you and potentially you'll end up ill then where would you all be???! Sell the house, downsize the business just do something to take the pressure of yourself. I'm in a similar situation and have taken an unpaid sabbatical from my teaching job. You have to take care of yourself too. If you can afford to take a break from work for a bit please do it. If you can't, downsize work commitments or get help from wherever you can.  
    The fact he spent his one day feeling well with his friends while you cleaned is annoying. The next good day he has insist you spend it together, with other people or not. 
    My husband is in treatment and I am his only carer. He hardly acknowledges me now but will chat happily with his friends on social media. He constantly watches TV or games. I expect he is handling things in his own way. We just have to try and get some positive time for ourselves. I try to go for a swim when I can. Xxx