Welcome to Cancer Chat lbachman although I'm sorry to hear that your daughter has been diagnosed with ESS at such a young age.
I know you're looking for others who have also had this diagnosis so I wanted to introduce you to [@Ch3ll368] and [@ms2016]. Now I've tagged them in this post I'm sure they will be along soon to offer their advice and share their experiences with you. I have also found a discussion about endometrial stromal sarcoma which I thought may be of interest to you as well.
